shtrom , to random
@shtrom@piaille.fr avatar

> "I just worry we're going to have a generation of kids who have a post-acute infection syndrome because we failed to protect them," Dr Putrino says, "because we told this lie over and over again that kids have nothing to worry about with COVID."

The myth that COVID is 'harmless' for kids has left millions of children with long COVID invisible. Here's what they want you to know https://www.abc.net.au/news/2024-06-16/children-with-long-covid-dismissed-doctors-myth-virus-harmless/103959078 via @wallabagapp

PhoenixSerenity , to random
@PhoenixSerenity@beige.party avatar

Mom was discharged, after she was stabilized, post day surgery/liver biopsy. She's going to rest in bed for rest of day when we get home. No strenuous physical activity for one week.

I had to ask almost all hospital medical staff, working with us today, to please put their masks on before coming near us. My handmarked mask helped with having no pushback on my mandatory mask-up request. Everyone I asked, stared at it, before grabbing masks & putting them on.

Selfie with me & Mom. She's in hospital bed, covered in blankets & has white face mask on. I'm in left corner wearing white face mask with marker text that reads: Covid Killed My Dad
Selfie with Mom - reflected off half orb mirror on ceiling. She's in hospital bed behind me. Two other unidentifiable patients are on hospital beds. I'm standing in hallway with my cane. Fisheye view.
Side profile selfie in taxi. Wearing a leather & felt hat & white mask with pink/black text that reads: Covid Killed My Dad.

PhoenixSerenity OP ,
@PhoenixSerenity@beige.party avatar

They should all mask up in hospitals. For everyone's safety, including their own.

In our several hours at today, I saw over 50 completely incapacitated/unconscious very elderly patients - wheeled in/out of surgery rooms by people with no masks on. They had no choice to protect their own health by staff who should know better. ATM - Hospitals, & their many unmasked staff, are playing Russian Roulette, on patients who cannot speak or advocate for themselves.

DomandoAlLobo ,
@DomandoAlLobo@mastodon.social avatar

@PhoenixSerenity You are right! And the fact is that when I have appointments, I and my mom are the only ones wearing masks in hospitals. When I see somenone else masked I think well, must be another vulnerable patient like me.
Glad your mom is better.




tomkindlon , to NoVID
@tomkindlon@disabled.social avatar

•First network meta-analysis of oral antiviral drugs effects on condition ( )

•Early use of oral antiviral drugs in acute phase of has a protective effect against PCC

•Nirmatrelvir-ritonavir may be a superior choice over molnupiravir on reducing risk of PCC

Hashtags:
@longcovid

@covid19
@novid

1/

ChiaraChiarel ,
@ChiaraChiarel@piaille.fr avatar

@tomkindlon @longcovid @covid19 @novid @auscovid19
the link doesn't work 😕

tomkindlon OP ,
@tomkindlon@disabled.social avatar

@ChiaraChiarel

Thanks for letting me know.

There are brackets in the link which I think may confuse the software.
This should work:
https://t.ly/J3ivM

@longcovid @covid19 @novid @auscovid19

tomkindlon , to AusCOVID19 group
@tomkindlon@disabled.social avatar
tomkindlon OP ,
@tomkindlon@disabled.social avatar

4/
"Participants described tracking health trajectories using wearables and other assistive devices including apps, [t]rackers and wireless activity and heart rate monitors to identify potential triggers and learn limits to inform strategies of pacing"

@longcovid

tomkindlon OP ,
@tomkindlon@disabled.social avatar

5/

"A notable feature of episodic disability in the context of Long COVID in this study was PESE or PEM which transcended physical, cognitive and mental-emotional dimensions, highlighting the ability of the framework to encompass critical features of disability experienced in the context of "

Hashtags:
@longcovid

@covid19

tomkindlon , to AusCOVID19 group
@tomkindlon@disabled.social avatar
nosat ,
@nosat@liberdon.com avatar

@SnerkRabbledauber @auscovid19 @covid19 @longcovid @novid @tomkindlon I hope you were this diligent about sources when you were told to take an experimental mystery injection a few years ago, if so, for sure you said no to it given the huge amount of horrible possible side effects that are listed directly by the manufacturer

here is a few fun ones to consider

SnerkRabbledauber ,
@SnerkRabbledauber@mycrowd.ca avatar

@nosat @auscovid19 @covid19 @longcovid @novid @tomkindlon

Please don't bother sharing any more propagandized information.

What do I mean by 'propagandized'? Well for one thing, the language (see 'rebranded flu') shows its purpose is not to describe, but rather to persuade.

But even more importantly it does not present information in a useful form.

Lists like this are useless without numbers. "Associated with" is a very, very broad term. Something that can occur in one out of a million cases can be said to be "associated with". Why don't you include car accidents on the list? Certainly at least one person that received a vaccination was also in a car accident, right? You could probably include shark attacks, and death by electrocution as well.

See the problem? Without numbers, this list is useless.

forestine , to random
@forestine@sunny.garden avatar

Covid Safer Pride zine from Act Up NY
available at https://actupny.com/zine/
or sharable here https://www.instagram.com/p/C7-BaWduahH/

artisanrox , to random
@artisanrox@mstdn.social avatar

OMG. never in one month have I actually witnessed so many near-accidents in traffic in my ???decades driving.

Poeple just......GOING across an intersection on a red light. Crossing like 7 lanes into opposing traffic. Seriously.

Just...going.

Every time I see it now I'm like....COVID brain??

tomkindlon , to NoVID
@tomkindlon@disabled.social avatar

New-ish Italian research:

Persisting exercise ventilatory inefficiency in subjects recovering from . Longitudinal data analysis 34 months post-discharge

Free full text:
https://bmcpulmmed.biomedcentral.com/articles/10.1186/s12890-024-03070-1

Hashtags:
@longcovid

@covid19 @novid @auscovid19

1/

tomkindlon OP ,
@tomkindlon@disabled.social avatar

2/
"Our study reports a close association between exercise hyperventilation and [Exercise ventilatory inefficiency] as a permanent and distinctive sign of a proportion of asymptomatic survivors after 34 months. Even if this phenomenon has been documented, the pathophysiological mechanism is still unclear."
@longcovid

samhainnight , to random
@samhainnight@mstdn.social avatar

It occurred to me today that even though over 1 million Americans have died from Covid, we have no national memorial or national day day of mourning and how the powers that be have decided to memory hole the whole thing and how wrong this is.

tomkindlon , to NoVID
@tomkindlon@disabled.social avatar
tomkindlon OP ,
@tomkindlon@disabled.social avatar

2/
"Remarkably, IgG transfer from the two subgroups, which are characterized by higher plasma levels of neuronal proteins and leukocyte activation markers, induced pronounced and persistent sensory hypersensitivity with distinct kinetics. Conversely, IgG transfer from the third subgroup, which are characterized by enriched skeletal and cardiac muscle proteome profiles, reduced locomotor activity in mice without affecting their motor coordination"

@longcovid @covid19

Osteopenia_Powers ,
@Osteopenia_Powers@newsie.social avatar

@tomkindlon @longcovid @covid19 @novid @auscovid19
Let’s hope this inspires some sophisticated and creative work in fighting long COVID, as well as prevention!

Geoffberner , to random
@Geoffberner@zeroes.ca avatar

The way the mainstream media covers Bird Flu is wild. It's like a watchman who sees a giant ogre coming and says, "There's on ogre out there. But don't worry, he's walking the other way. Oop! He's walking this way, but he's probly headed somewhere else. Oh, ok, he's headed this way, but he probably won't eat anybody when he gets here. Ok, he's here, but so far he's only looking at folks hungrily. He's probably just window shopping. Ok, so now..."

tomkindlon , to NoVID
@tomkindlon@disabled.social avatar

Long Support:
Research Involvement Consultancy

"We make it easy to involve people with in your research and help ensure your study is relevant, robust and keeps the patient voice at the centre."

https://www.longcovid.org/research/research-involvement-consultancy

@longcovid


@covid19 @novid @auscovid19

1/

ALT
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  • tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/
    "Our research advisers are all people with Long Covid who are trained in Patient Involvement in Research and have practical experience of being involved in various studies. Book a slot in one of our regular scheduled online advice sessions."

    Hashtags:
    @longcovid


    @covid19 @auscovid19

    Jeannho , to random
    @Jeannho@glammr.us avatar

    “North Carolina Shelves Controversial Mask Ban Bill Amid Public Outcry”

    “North Carolina's House Bill 237, which aimed to criminalize wearing masks in public, has been temporarily shelved due to widespread online protests and petitions.”

    But only temporarily.

    https://tr.im/politics/north-carolina-shelves-controversial-mask-ban-bill-amid-public-outcry

    CoolerPseudonym , to random
    @CoolerPseudonym@wandering.shop avatar

    I dunno if anyone will not have heard, but the fancy Cue Health NAAT molecular test, with the handheld gizmo, has been revealed to be a near-fraud. The FDA found that the company implemented non-approved changes to reagent formulations and device firmware post-EUA that will have significantly reduced the test’s accuracy.

    In response to the FDA’s letter, the company elected to go out of business.

    Don’t use these tests.

    https://www.fda.gov/inspections-compliance-enforcement-and-criminal-investigations/warning-letters/cue-health-inc-675673-05092024

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    Cerebral microstructural alterations in Post-COVID-condition are related to cognitive impairment, olfactory dysfunction and fatigue

    Free full text:
    https://www.nature.com/articles/s41467-024-48651-0

    Hashtags:
    @longcovid

    @covid19
    @novid
    @auscovid19

    1/

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    3/

    "(Contd) In line with this assumed chronicity, 85% of patients reporting complaints two months after COVID-19 still reported symptoms one year after their symptom onset"

    Hashtags:
    @longcovid

    @covid19
    @novid
    @auscovid19

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    4/

    "we applied the advanced imaging technique [Diffusion Microstructure Imaging] to uncover microstructural changes after infection, with the observation of different patterns in a cohort of patients with and without PCC [Post-COVID-condition]"

    Hashtags:
    @longcovid

    @covid19
    @novid
    @auscovid19

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