tomkindlon , to AusCOVID19 group
@tomkindlon@disabled.social avatar
tomkindlon , to longcovid group
@tomkindlon@disabled.social avatar

Vocational rehabilitation for Long Covid: a roadmap for recovery

https://t.co/oqCQPoxwt7

"Long Covid and similar energy-limiting illnesses cause a range of health problems which result in long-term sickness absence and long-term unemployment in an era of workforce shortage."

Hashtags:
@longcovid

@spoonies
1/

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  • tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/

    "(Contd) The variability of the condition and of employer attitudes, severity of impact on daily life and work, and the fluctuating nature of the condition pose the question of how to manage a sustained return to work."

    @longcovid @spoonies

    erictopol , to random
    @erictopol@mstdn.social avatar

    Vaccination prevents loss of brain hippocampus neurogenesis, loss of memory, accumulation of IL-1β, central nervous system hit in the mouse model
    https://nature.com/articles/s41590-024-01868-z

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    Meta-analysis of Cognitive Function Following Non-severe SARSCoV2 Infection

    Paywall:
    https://link.springer.com/article/10.1007/s11065-024-09642-6

    "The aim of this meta-analysis is to describe objective cognitive impairment in individuals with non-severe (mild or moderate) cases in the post-acute stage of infection”

    Hashtags:
    @longcovid

    @covid19

    tomkindlon , to AusCOVID19 group
    @tomkindlon@disabled.social avatar
    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/

    "Significantly increased Cho concentrations & decreased NAA/Cho were found in the CCS in the older subjects"

    "may be related to the microstructural reorganization in the corpus callosum (also reported in diffusion measurements) rather than increased membrane turnover"

    ==============
    Hashtags:
    @longcovid

    @covid19

    sheislaurence , to longcovid group
    @sheislaurence@mastodon.social avatar

    It's so good to see a televised broadcast with a confirming that each infection will increase the risk of long-term effects, typically but not just that. It is exhausting to people like me who are very much because we know that IN THE FLESH, and we don't see anything or anyone anywhere validating our experience: not out of solidarity but as a scientific truth? I have to justify myself EVERY DAY 😷.! @longcovid
    https://www.youtube.com/watch?v=heT5myyBkNA

    Via @augieray

    tomkindlon , to ChronicIllness group
    @tomkindlon@disabled.social avatar

    Ancient Greek word of the day: κακοθερής (kakotherēs), unsuited to endure summer heat (literally, bad at summer).

    My thoughts are with those with conditions such as ME for which this is relevant.

    Hashtags:
    @longcovid
    @chronicillness
    @spoonies
    @disability
    @mecfs

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  • tomkindlon , to AusCOVID19 group
    @tomkindlon@disabled.social avatar

    New French study

    Persistent brain metabolic impairment in long COVID patients with persistent clinical symptoms: a nine-month follow-up [18F]FDG-PET study

    Abstract:
    https://link.springer.com/article/10.1007/s00259-024-06775-x

    ====================
    Hashtags:
    @longcovid

    @covid19
    @novid @novid
    @auscovid19

    1/

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/
    "SARS-CoV-2 provokes persistent long-term brain metabolic changes on brain FDG PET in the selected population of patients with prolonged long COVID symptoms, without progressive worsening of the hypometabolisms."

    ================
    Hashtags:
    @longcovid

    @covid19
    @novid @novid
    @auscovid19

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    New German study

    Altered brain perfusion and oxygen levels relate to sleepiness and attention in

    Free full text:
    https://onlinelibrary.wiley.com/doi/10.1002/acn3.52121

    "our study shows widespread reductions in cerebral blood oxygen levels in PCS that are related to symptoms of daytime dysfunction and cognitive impairment (contd)"

    Hashtags:
    @longcovid

    @covid19

    1/

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/

    "(Contd) Changes in oxygen metabolism and blood perfusion may serve as an adaptive mechanism to mediate brain vascular damage and/or as a mode of maintaining normal daily functioning."

    ========================
    Hashtags:
    @longcovid

    @covid19
    @novid @novid
    @auscovid19

    ahimsa_pdx , to ChronicIllness group
    @ahimsa_pdx@disabled.social avatar

    "Long Covid feels like a gun to my head"

    https://www.statnews.com/2024/06/18/long-covid-infectious-disease-expert-personal-story-life-with-no-cure/

    "I have spent my career studying infectious diseases that fall under the heading of neglected tropical diseases. Now I have a neglected disease — long Covid — an incurable (for now and for me) disease."

    @longcovid @mecfs
    @chronicillness

    ahimsa_pdx , to longcovid group
    @ahimsa_pdx@disabled.social avatar
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  • IrishMECFSAssociation , to ChronicIllness group
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  • tomkindlon , to AusCOVID19 group
    @tomkindlon@disabled.social avatar

    Press release:
    “Risk factors for revealed”
    https://www.eurekalert.org/news-releases/1048330

    “Although studies have suggested many patients with long experience mental health challenges, we did not find that depressive symptoms prior to infection were a major risk factor for long COVID”

    @longcovid


    @covid19 @auscovid19

    ahimsa_pdx , to longcovid group
    @ahimsa_pdx@disabled.social avatar

    "Here's What Is Wrong With the National Academies' Long COVID Definition — Overly broad criteria won't help patients in the long run"

    https://www.medpagetoday.com/opinion/second-opinions/110658?trw=no

    @longcovid
    @covid19

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  • ahimsa_pdx , to longcovid group
    @ahimsa_pdx@disabled.social avatar

    Here's the latest News in Brief from the Science for ME forum, for week starting June 10:

    https://www.s4me.info/threads/news-in-brief-june-2024.38870/#post-538457/

    This summary includes media coverage, research news, patient advocacy, coming events, and more.

    @mecfs @longcovid

    tomkindlon , to AusCOVID19 group
    @tomkindlon@disabled.social avatar

    ABC News (Australia): Too many children with are suffering in silence

    https://t.ly/SrKjj

    "One of the things that shocks Dr Scoullar most, though, is how many of her patients have struggled with other doctors,especially paediatricians”

    Hashtags:
    @longcovid @covid19 @novid @auscovid19

    skry , to random
    @skry@mastodon.social avatar

    … (1/4)

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    Childhood, interrupted: 12-year-old Toby's life with

    https://www.theguardian.com/society/article/2024/jun/12/childhood-interrupted-12-year-old-tobys-life-with-long-covid

    111,816 children in England & Scotland are estimated to have Long Covid. Toby & his family describe the harsh reality & impact of this disease. Dr Binita Kane says the NHS is not keeping up with the massive challenge Long represents. The article also mentions reinfection as an elephant in the room.

    @longcovid

    @covid19
    @novid

    tomkindlon , to AusCOVID19 group
    @tomkindlon@disabled.social avatar

    From: Long Covid Advocacy 💙
    @LongCovidAdvoc on the bird site :

    🏳️‍🌈It's & thank you to Taipai Queen for talking about the intersection with

    "It's never too late to start wearing your mask again"

    😷Protect Others Protect Yourself 😷

    @longcovid

    @covid19
    @novid
    @auscovid19

    video/mp4

    tomkindlon , to NoVID
    @tomkindlon@disabled.social avatar

    From David Tuller DrPH

    “In a recent piece Betsy Ladyzhets [from The Sick Times] reports about problems with RECOVER based on documents obtained through the Freedom of Information Act. We talked the other day about her findings.”

    https://virology.ws/2024/06/13/trial-by-error-betsy-ladyzhets-on-problems-with-nihs-recover-initiative/

    @longcovid


    @novid

    1/

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/

    "Ladyzhets recently wrote a new article about RECOVER, published in The Sick Times
    as well as STAT, based on documents she received from NIH through the Freedom of Information Act. We spoke the other day about what she found out".


    @longcovid

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