A new issue of our Patient-Generated Hypotheses Journal is out! It includes hypotheses on mechanisms & treatments for #LongCovid, ME/CFS, & POTS from patients & caregivers with diverse backgrounds, ranging from PhDs to self-taught patient experts
"Post-exertional malaise (PEM) isn’t due to laziness or deconditioning." - Clayton Powers, DPT Do your symptoms worsen when you push yourself beyond your energy threshold? Powers explains what PEM is in this short video: https://youtu.be/UkS6L3Klc00
CPET performed in a well matched cohort with and without acute Covid. "Patients with #COVID19 peculiarly showed a high degree of VE inefficiency as signaled by a marked increase in VE/VCO2 slope"
Trial by Error by David Tuller: Athlete Oonagh Cousins on the Lightning Process
A conversation with world-class rower Oonagh Cousins who got long Covid and whose story has been told by the BBC.
The BBC also covered her negative experience with the contested alternative treatment Lightning Process which she says is exploiting people.
NIH Director Monica Bertagnolli ( @NIHDirector ) comments last week at the NIH ACD (Advisory Committee to the Director) Meeting on Long COVID & RECOVER
"The aim of this meta-analysis is to describe objective cognitive impairment in individuals with non-severe (mild or moderate) #SARSCoV2 cases in the post-acute stage of infection”
“Although studies have suggested many patients with long #COVID experience mental health challenges, we did not find that depressive symptoms prior to #SARSCoV2 infection were a major risk factor for long COVID”
111,816 children in England & Scotland are estimated to have Long Covid. Toby & his family describe the harsh reality & impact of this disease. Dr Binita Kane says the NHS is not keeping up with the massive challenge Long #Covid represents. The article also mentions reinfection as an elephant in the room.
"We report on a patient suffering from fatigue, post exertional malaise, pain & neurological symptoms as a consequence of the second #CoVID infection. Using live confocal microscopy on native whole blood samples we detected microaggregates of thrombocytes, leukocytes and plasma proteins in peripheral blood”