tomkindlon , to longcovid group
@tomkindlon@disabled.social avatar

Cerebral microstructural alterations in Post-COVID-condition are related to cognitive impairment, olfactory dysfunction and fatigue

Free full text:
https://www.nature.com/articles/s41467-024-48651-0

Hashtags:
@longcovid

@covid19
@novid
@auscovid19

1/

tomkindlon OP ,
@tomkindlon@disabled.social avatar

2/

"the time span between positive SARS-CoV-2 PCR and the cerebral MRI did not explain alterations of gray matter DMI parameters or spatial distribution of V-extra changes between the PCC and UPC groups. Thus, one could speculate on a slow or even non-reversibility of microstructural changes observed here. In line with this assumed chronicity, 85% of patients reporting complaints two months after COVID-19 still reported symptoms one year after their symptom onset"

@longcovid
#LongCovid #PwLC

tomkindlon , to longcovid group
@tomkindlon@disabled.social avatar

(pay-walled)
"Is it time to move beyond blood pressure & heart rate during head-up tilt testing?"
https://www.springermedizin.de/is-it-time-to-move-beyond-blood-pressure-and-heart-rate-during-h/27098904

The authors emphasise orthostatic changes in cerebral blood flow, electrocortical activity, heart rate variability, or oxygen extraction, among other physiological changes, can occur in the presence of a completely normal blood pressure or heart rate response on head-up tilt table testing

@pots @longcovid
@mecfs

ahimsa_pdx , to longcovid group
@ahimsa_pdx@disabled.social avatar

"COVID can cause new health problems to appear years after infection, according to a study of more than 130,000 patients"

https://fortune.com/well/article/covid-cause-new-health-problems-years-after-infection/

"With more than 130,000 patients, the study is by far the largest so far to track the progress of the virus over a full three-year period."

@longcovid @mecfs

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  • tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    “Want to enroll in a clinical trial? This new project helps track them”

    https://thesicktimes.org/2024/03/26/want-to-enroll-in-a-long-covid-clinical-trial-this-new-project-helps-track-them/

    “As of its launch on March 26, the site includes details of about 550 trials in the U.S. and 54 other countries”

    Hashtags:

    @longcovid


    @covid19 @auscovid19

    1/

    halcionandon , to longcovid group
    @halcionandon@disabled.social avatar

    Did anyone with #Covid get a ton of rashes you can’t explain?

    Nothing gets rid of them.

    Plenty of other symptoms but this is one that doctors always blame on allergies.

    My hair also got intensely dry to the point where it didn’t need washing for 3 weeks. There was no sebum! I had to oil it & leave it in for a week even after using a very rich conditioning treatment.

    My nose would also not stop bleeding.

    I’m about 2 months into my second infection. Already have #LongCovid.

    @longcovid

    fehrtrade , to random
    @fehrtrade@toot.community avatar

    We spent all afternoon taking our two candidate cargo bikes for longer test rides, and we’re buying this one! 🥳

    It’s a Max & Maleon Passenger ( https://maxandmaeleon.com/en/passenger-bike/ ) and we highly recommend the guys at Flying Dutchman Bikes, who’ve been SO incredibly helpful. It’s not easy finding any info on hauling adult passengers…

    Long may we adventure this summer!

    #LongCovid #cycling

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    I haven't read the full text myself but it looks sympathetic:

    "Navigating an unfamiliar world – Parents' experiences of having a child with post COVID-19"

    Free full text:
    https://www.sciencedirect.com/science/article/pii/S0882596324002057

    Hashtags:
    @longcovid

    @covid19

    rchusid , to random
    @rchusid@med-mastodon.com avatar

    Biden criticized for minimal funding for Long Covid after his Covid policies have led to increase in those suffering from Long Covid.
    #COVID #LongCovid

    https://thehill.com/policy/healthcare/4682533-long-covid-advocates-hammer-biden-over-minimal-funding-in-budget-request/

    rchusid , to random
    @rchusid@med-mastodon.com avatar

    Another study shows that vaccination can reduce but not eliminate risk of Long Covid. A comprehensive set of precautions, including but not limited to vaccines, is needed to protect against Long Covid.

    https://www.nature.com/articles/s41467-024-48022-9

    yoboseiyo , to random
    @yoboseiyo@retro.pizza avatar

    hey! johns hopkins is doing a survey about long covid! but they're having trouble finding CONTROLS, so if you've managed to avoid covid (#novid ) they wanna hear from you!

    https://covid-long.com/

    i took it! took about 30mins, and they ask about your vaccinations, so you might wanna have your card handy because they wanna know how many, what brand, and when. go help them out! #covid #LongCovid #COVID19

    atomicker , to random
    @atomicker@mstdn.ca avatar

    'Over 10% of patients with COVID aftereffects fired, quit or close business: Tokyo clinic'

    #Covid #Covid19 #CovidIsNotOver #SarsCov2 #LongCovid #Tokyo #Japan

    https://mainichi.jp/english/articles/20240513/p2a/00m/0na/020000c

    CastlTrAstonDrs , to random
    @CastlTrAstonDrs@med-mastodon.com avatar

    #IDMastodon #Neuroinflammation #NeuroCovid Among #LongCOVID patients, cognitive symptoms are the most frequently reported complaints (22–51.1% ) & so far have been described to mainly affect concentration/attention, memory , receptive language and/or executive function ,

    ALT
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  • davidaugust , to random
    @davidaugust@mastodon.online avatar

    Do you know what killed more than 19,000 Americans in the last 3 months? Covid. About 9 an hour. Many many more than that have been hurt, often permanently.

    That’s a lower number than previously, yet the risks remain.

    Stay home when ill, wear masks in crowds and inside, stay up to date on your vaccinations and improve ventilation (ex: opening windows) to stay healthier.

    Source: https://covid.cdc.gov/covid-data-tracker/#maps_deaths-3-months

    #covid #LongCovid #Covid19 #health #PublicHealth

    ThunderHoneySnow , to random
    @ThunderHoneySnow@mas.to avatar

    Long Covid can impact "everyone, regardless of age or the severity of one’s original symptoms.³ The largest group of people living with Long COVID is younger than one might think. According to the CDC, U.S. adults ages 35-49 had the highest rates of Long COVID symptoms . . . Plus, a recent study showed that by one’s third COVID-19 infection, patients have a 40% chance of developing long term symptoms"

    #LongCovid #Covid19 #MaskUp

    https://www.modernatx.com/media-center/all-media/blogs/long-covid-awareness-day-2024

    CastlTrAstonDrs , to random
    @CastlTrAstonDrs@med-mastodon.com avatar

    #IDMastodon it’s taken me nearly 4 yrs to recover from #LongCovid . I’m 1 of a fraction LC population to recover & #MaskUp 😷 always be for I leave the house. Is #longCOVID forever? A new study has clues.
    Research hints that those with symptoms may see an improvement after two years—but not everyone…

    https://archive.ph/pskcu#selection-5037.139-5037.255

    Inforgraphic

    GottaLaff , to random
    @GottaLaff@mastodon.social avatar

    Warning as First American Dolphin Diagnosed With Highly Pathogenic Bird Flu https://www.newsweek.com/warning-first-ever-american-dolphin-diagnosed-bird-flu-1895121

    kkarhan ,
    @kkarhan@infosec.space avatar

    @Hex @philip_cardella @GottaLaff well fuck...

    Now add to that people having #LongCovid and the immunosuppressive effectives of #Covid and the removal of previously existing protections and rules re: infectious diseases because we let #CovidDeniers dominate politricks and policymaking and I sincerely hope it'll just be 50% mortality and not worse...

    DenisCOVIDinfoguy , to AusCOVID19 group
    @DenisCOVIDinfoguy@aus.social avatar

    More than a quarter of people with COVID infection develop Long COVID, new research reveals.

    "A new study carried out by researchers at the University of York suggests 28% of people who catch COVID-19 will go on to suffer from Long COVID."

    “There is a societal tendency in the UK to think Covid is over, but Long Covid is having a profound and lasting effect on individuals and society as a whole, with many people leaving the workplace due to the condition. This is placing a heavy burden on the economy.”

    #LongCOVID @auscovid19

    Source: https://www.york.ac.uk/news-and-events/news/2024/research/long-covid-fog/

    bobjmsn , to random
    @bobjmsn@mastodon.scot avatar
    blackfinalboi , to random
    @blackfinalboi@diaspora.im avatar

    what the fuck do we do. theyve destroyed communication in gaza. they keep bombing. we don't even know how bad it is. if it was that bad when the world was watching. Jesus.

    blackfinalboi OP ,
    @blackfinalboi@diaspora.im avatar

    Mask Buying Guide

    By Mask Bloc Seattle

    If you find any dead links in this guide, please reach out to us and let us know

    IG: @MaskBlocSeattle

    Email: maskblocseattle@proton.me

    https://docs.google.com/document/d/1dlZenZ2IAIsLlWptHJ-EB3zyCXRw7_-hk1Jf-zsNUzM/mobilebasic

    #COVID #LongCovid

    blackfinalboi OP ,
    @blackfinalboi@diaspora.im avatar

    "What's Up with Covid and How to Protect Yourself 2024 Edition" zine by Hazel Newlevant

    https://newlevant.com/covidzine

    #COVID #LongCovid

    blackfinalboi OP ,
    @blackfinalboi@diaspora.im avatar
    blackfinalboi OP ,
    @blackfinalboi@diaspora.im avatar

    HELP A BLACK FAMILY SURVIVE

    This woman's gofundme has been up for OVER A YEAR and is not even halfway to her goal. one of her kids posted on birdsite about how they're terrified that so soon after celebrating her birthday, they may have to plan for her funeral. donate and share.

    https://www.gofundme.com/f/help-support-my-surgeries-living-expenses

    Originally for this woman's recovery from Long Covid and payment for surgeries needed to help her breathe and move, most of the money is now going towards her daughter who is battling stage two breast cancer (the most aggressive type, which you can see in the updates).

    #Disability #Covid #Covid19 #LongCovid #Cancer #MutualAid #BlackMutualAid #BlackMastodon

    blackfinalboi OP ,
    @blackfinalboi@diaspora.im avatar

    Ten new books about Long Covid, chronic illness, and disability by The Sick Times

    https://thesicktimes.org/2024/05/21/ten-new-books-about-long-covid-chronic-illness-and-disability/

    #Covid #LongCovid

    blackfinalboi OP ,
    @blackfinalboi@diaspora.im avatar

    C19LAP Assessment of Long COVID Disability Applications.
    Are you a person with Long COVID or a caregiver for a person with Long COVID?

    https://docs.google.com/forms/d/e/1FAIpQLSefgXbhptB2o8FvIRYLmUcZTIkfO-BPlXGTX7YH_YFMZaUHjA/viewform?pli=1

    In Jan 2022, C19LAP data highlighted 44% of our respondents in a survey of over 400 people, said they had applied for SS disability.

    We are interested in seeing how many people, as of mid 2024, with Long COVID have been applying for Social Security Disability, and what that process has been like for them.

    We are asking the Long COVID community whether they have applied or not, to take this survey, as we would like to utilize the data in our advocacy efforts. This form is anonymous.

    #Covid #LongCovid

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