tomkindlon , to AusCOVID19 group
@tomkindlon@disabled.social avatar
tomkindlon OP ,
@tomkindlon@disabled.social avatar

3/
Figure S-1 Definition figure: 2024 NASEM Long COVID definition

From:
A new definition for Long COVID that has been launched today by the National Academies in the US
https://nap.nationalacademies.org/cart/download.cgi?record_id=27768

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tomkindlon OP ,
@tomkindlon@disabled.social avatar

4/
"Frequencies of new onset symptoms (in )

Among participants with , the most common symptoms were post-exertional malaise (87%), fatigue (85%), brain fog (64%), dizziness or lightheadedness (62%), GI (59%), & palpitations (57%)."

From pp.46

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  • forestine , to random
    @forestine@sunny.garden avatar

    Covid Safer Pride zine from Act Up NY
    available at https://actupny.com/zine/
    or sharable here https://www.instagram.com/p/C7-BaWduahH/

    luckytran , to random
    @luckytran@med-mastodon.com avatar

    It’s unethical that COVID is frequently left out of conversations about public transport accessibility. Many disabled and higher risk people haven’t been able to access public transport for years due to the lack of masks and clean air. This is a huge equity issue.

    gcspitfire ,
    @gcspitfire@mastodon.social avatar

    @luckytran still wearing a mask while using public transport because

    mjausson , to random
    @mjausson@mastodon.design avatar
    artisanrox , to random
    @artisanrox@mstdn.social avatar

    OMG. never in one month have I actually witnessed so many near-accidents in traffic in my ???decades driving.

    Poeple just......GOING across an intersection on a red light. Crossing like 7 lanes into opposing traffic. Seriously.

    Just...going.

    Every time I see it now I'm like....COVID brain??

    tomkindlon , to NoVID
    @tomkindlon@disabled.social avatar
    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    4/
    “People are developing new-onset disease as the result of an infection that they had 3 years ago,” says Ziyad Al-Aly, “It challenges the notion that these viruses are sort of self-contained or that after the acute phase, they become inconsequential.”

    Hashtags:
    @longcovid


    @covid19 @novid @auscovid19

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    5/

    "And cumulatively, at three years, results in 91 disability-adjusted life years (DALY) per 1,000 people—DALYs being a measure of years lost to poor health or premature death. That is a higher incidence than either heart disease or cancer."

    Hashtags:
    @longcovid


    @covid19 @novid @auscovid19

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    6/
    Three-year outcomes of post-acute sequelae of COVID-19

    Free:
    https://www.nature.com/articles/s41591-024-02987-8

    "Risks for post-acute sequelae declined over the years, but substantial residual risk remained in the third year, leading to 252.8 sequelae per 1,000 persons& 90.0 DALYs per 1,000 persons”

    @longcovid @covid19 @novid

    tomkindlon , to NoVID
    @tomkindlon@disabled.social avatar

    New-ish Italian research:

    Persisting exercise ventilatory inefficiency in subjects recovering from . Longitudinal data analysis 34 months post-discharge

    Free full text:
    https://bmcpulmmed.biomedcentral.com/articles/10.1186/s12890-024-03070-1

    Hashtags:
    @longcovid

    @covid19 @novid @auscovid19

    1/

    samhainnight , to random
    @samhainnight@mstdn.social avatar

    It occurred to me today that even though over 1 million Americans have died from Covid, we have no national memorial or national day day of mourning and how the powers that be have decided to memory hole the whole thing and how wrong this is.

    tomkindlon , to NoVID
    @tomkindlon@disabled.social avatar
    Geoffberner , to random
    @Geoffberner@zeroes.ca avatar

    The way the mainstream media covers Bird Flu is wild. It's like a watchman who sees a giant ogre coming and says, "There's on ogre out there. But don't worry, he's walking the other way. Oop! He's walking this way, but he's probly headed somewhere else. Oh, ok, he's headed this way, but he probably won't eat anybody when he gets here. Ok, he's here, but so far he's only looking at folks hungrily. He's probably just window shopping. Ok, so now..."

    tomkindlon , to NoVID
    @tomkindlon@disabled.social avatar

    Long Support:
    Research Involvement Consultancy

    "We make it easy to involve people with in your research and help ensure your study is relevant, robust and keeps the patient voice at the centre."

    https://www.longcovid.org/research/research-involvement-consultancy

    @longcovid


    @covid19 @novid @auscovid19

    1/

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  • tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/
    "Our research advisers are all people with Long Covid who are trained in Patient Involvement in Research and have practical experience of being involved in various studies. Book a slot in one of our regular scheduled online advice sessions."

    Hashtags:
    @longcovid


    @covid19 @auscovid19

    Jeannho , to random
    @Jeannho@glammr.us avatar

    “North Carolina Shelves Controversial Mask Ban Bill Amid Public Outcry”

    “North Carolina's House Bill 237, which aimed to criminalize wearing masks in public, has been temporarily shelved due to widespread online protests and petitions.”

    But only temporarily.

    https://tr.im/politics/north-carolina-shelves-controversial-mask-ban-bill-amid-public-outcry

    CoolerPseudonym , to random
    @CoolerPseudonym@wandering.shop avatar

    I dunno if anyone will not have heard, but the fancy Cue Health NAAT molecular test, with the handheld gizmo, has been revealed to be a near-fraud. The FDA found that the company implemented non-approved changes to reagent formulations and device firmware post-EUA that will have significantly reduced the test’s accuracy.

    In response to the FDA’s letter, the company elected to go out of business.

    Don’t use these tests.

    https://www.fda.gov/inspections-compliance-enforcement-and-criminal-investigations/warning-letters/cue-health-inc-675673-05092024

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    The importance of including Long #COVID outcomes when developing novel treatments for acute COVID-19

    Free
    https://academic.oup.com/jid/advance-article/doi/10.1093/infdis/jiae270/7676685

    "In our review, we argue there are 7 compelling reasons to include #LongCovid measurements"

    @longcovid
    #PwLC #PostCovidSyndrome #LC #PASC #postcovid
    #CovidBrain
    @covid19 #COVIDー19 #COVID19 #COVID_19 #SARSCoV2 @novid #novid #CovidIsNotOver #auscovid19 @auscovid19

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    Emerge Australia Research Digest | Issue 106
    https://www.emerge.org.au/researchdigest/research-digest-issue-106/

    3 out of the 4 papers look at groups after Covid infection; the 4th paper looks at a group after Epstein-Barr virus infection

    Hashtags:
    @longcovid
    #LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC #COVIDBrain
    #MEcfs #CFS #PwME #LongCovidKids @mecfs
    @covid19 #Coronavirus
    #COVIDー19 #COVID19 #COVID #COVID_19 #SARSCoV2 @novid #novid #CovidIsNotOver
    #ChronicFatigueSyndrome

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  • tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    May 2 Australian paper

    Blood brain barrier disruption and glutamatergic excitotoxicity in post-acute sequelae of infection cognitive impairment: potential biomarkers & a window into pathogenesis

    Free:
    https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2024.1350848/full

    Hashtags:
    @longcovid

    @covid19
    @novid
    @auscovid19

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  • tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/
    "We have undertaken a comprehensive proof-of-concept prospective case–control study to investigate parallel changes in blood brain barrier permeability, neurochemicals, & white matter microstructure changes in CI [cognitive impairment] patients"

    Hashtags:
    @longcovid

    @covid19 @auscovid19

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    Cerebral microstructural alterations in Post-COVID-condition are related to cognitive impairment, olfactory dysfunction and fatigue

    Free full text:
    https://www.nature.com/articles/s41467-024-48651-0

    Hashtags:
    @longcovid

    @covid19
    @novid
    @auscovid19

    1/

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    3/

    "(Contd) In line with this assumed chronicity, 85% of patients reporting complaints two months after COVID-19 still reported symptoms one year after their symptom onset"

    Hashtags:
    @longcovid

    @covid19
    @novid
    @auscovid19

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    4/

    "we applied the advanced imaging technique [Diffusion Microstructure Imaging] to uncover microstructural changes after infection, with the observation of different patterns in a cohort of patients with and without PCC [Post-COVID-condition]"

    Hashtags:
    @longcovid

    @covid19
    @novid
    @auscovid19

    inquiline , to random
    @inquiline@union.place avatar

    "This is the first US surge with no hospital data... Remember when CDC said that hospital metrics would be the trigger for prevention protections, like the return of masking?"

    Thanks @violetblue for your work 😷❤️

    https://www.patreon.com/posts/105208504

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