tomkindlon , to NoVID
@tomkindlon@disabled.social avatar
tomkindlon OP ,
@tomkindlon@disabled.social avatar

2/
"Remarkably, IgG transfer from the two subgroups, which are characterized by higher plasma levels of neuronal proteins and leukocyte activation markers, induced pronounced and persistent sensory hypersensitivity with distinct kinetics. Conversely, IgG transfer from the third subgroup, which are characterized by enriched skeletal and cardiac muscle proteome profiles, reduced locomotor activity in mice without affecting their motor coordination"

@longcovid @covid19

Osteopenia_Powers ,
@Osteopenia_Powers@newsie.social avatar

@tomkindlon @longcovid @covid19 @novid @auscovid19
Let’s hope this inspires some sophisticated and creative work in fighting long COVID, as well as prevention!

tomkindlon , to NoVID
@tomkindlon@disabled.social avatar

Long Support:
Research Involvement Consultancy

"We make it easy to involve people with in your research and help ensure your study is relevant, robust and keeps the patient voice at the centre."

https://www.longcovid.org/research/research-involvement-consultancy

@longcovid


@covid19 @novid @auscovid19

1/

ALT
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  • tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/
    "Our research advisers are all people with Long Covid who are trained in Patient Involvement in Research and have practical experience of being involved in various studies. Book a slot in one of our regular scheduled online advice sessions."

    Hashtags:
    @longcovid


    @covid19 @auscovid19

    Jeannho , to random
    @Jeannho@glammr.us avatar

    “North Carolina Shelves Controversial Mask Ban Bill Amid Public Outcry”

    “North Carolina's House Bill 237, which aimed to criminalize wearing masks in public, has been temporarily shelved due to widespread online protests and petitions.”

    But only temporarily.

    https://tr.im/politics/north-carolina-shelves-controversial-mask-ban-bill-amid-public-outcry

    CoolerPseudonym , to random
    @CoolerPseudonym@wandering.shop avatar

    I dunno if anyone will not have heard, but the fancy Cue Health NAAT molecular test, with the handheld gizmo, has been revealed to be a near-fraud. The FDA found that the company implemented non-approved changes to reagent formulations and device firmware post-EUA that will have significantly reduced the test’s accuracy.

    In response to the FDA’s letter, the company elected to go out of business.

    Don’t use these tests.

    https://www.fda.gov/inspections-compliance-enforcement-and-criminal-investigations/warning-letters/cue-health-inc-675673-05092024

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    autonomic syndrome in working age & work ability impairment

    https://www.nature.com/articles/s41598-024-61455-y

    “1/3 working-age people developed a new autonomic syndrome that was still evident 6 months after the acute infection resolution” (hospitalised cohort)

    @longcovid

    @covid19 @novid @auscovid19

    1/

    ahimsa_pdx ,
    @ahimsa_pdx@disabled.social avatar

    @tomkindlon

    Interesting, thanks!

    This part caught my eye:

    "Interestingly, several symptoms characterizing Long-COVID19 mirror the Postural Orthostatic Tachycardia Syndrome [POTS] that represents the most common form of dysautonomia causing orthostatic intolerance …

    The autonomic symptoms reported after SARS-CoV-2 infection are often underestimated by patients and unrecognized by treating physicians."

    (emphasis added)

    @longcovid

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    Cerebral microstructural alterations in Post-COVID-condition are related to cognitive impairment, olfactory dysfunction and fatigue

    Free full text:
    https://www.nature.com/articles/s41467-024-48651-0

    Hashtags:
    @longcovid

    @covid19
    @novid
    @auscovid19

    1/

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    3/

    "(Contd) In line with this assumed chronicity, 85% of patients reporting complaints two months after COVID-19 still reported symptoms one year after their symptom onset"

    Hashtags:
    @longcovid

    @covid19
    @novid
    @auscovid19

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    4/

    "we applied the advanced imaging technique [Diffusion Microstructure Imaging] to uncover microstructural changes after infection, with the observation of different patterns in a cohort of patients with and without PCC [Post-COVID-condition]"

    Hashtags:
    @longcovid

    @covid19
    @novid
    @auscovid19

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    “Want to enroll in a clinical trial? This new project helps track them”

    https://thesicktimes.org/2024/03/26/want-to-enroll-in-a-long-covid-clinical-trial-this-new-project-helps-track-them/

    “As of its launch on March 26, the site includes details of about 550 trials in the U.S. and 54 other countries”

    Hashtags:

    @longcovid


    @covid19 @auscovid19

    1/

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/

    Betsy Ladyzhets collates information on numbers and types of studies, and describes a website https://longcovidstudies.net that lists observational & interventional Long studies around the world to help people find ones they might participate in

    Hashtags:
    @longcovid


    @covid19 @auscovid19

    halcionandon , to longcovid group
    @halcionandon@disabled.social avatar

    Did anyone with get a ton of rashes you can’t explain?

    Nothing gets rid of them.

    Plenty of other symptoms but this is one that doctors always blame on allergies.

    My hair also got intensely dry to the point where it didn’t need washing for 3 weeks. There was no sebum! I had to oil it & leave it in for a week even after using a very rich conditioning treatment.

    My nose would also not stop bleeding.

    I’m about 2 months into my second infection. Already have .

    @longcovid

    JetlagJen ,
    @JetlagJen@geekdom.social avatar

    @halcionandon @longcovid yes, a few times.

    I get red patches that appear, are a little itchy for a few days, them fade. Random places, random times. No pattern or trigger that I can determine. Luckily they're not too bad for me, so just ignore them. But rashes can definitely be a long covid thing.

    It messes with heart rate and blood pressure, which might explain the nose bleeds.

    The dry hair is a new one on me, but there doesn't seem to be any part of the body it can't affect.

    DemocracyMattersALot , to random
    @DemocracyMattersALot@mstdn.social avatar

    No one has killed more Americans than Donald Trump. No one. In history.

    noyes ,
    @noyes@mastodon.online avatar

    @DemocracyMattersALot
    Trump's handling of his portion of the SARS-CoV-2 pandemic was morally and scientifically superior to Biden's handling of the terminus of the SARS-CoV-2 pandemic, continuing promotion of the Omicron Pandemic, and current promotion of BA.2.86 and its descendants. No president, not even Trump, has demonstrated as muchh disdain for the general welfare and safety of the American people as Joe Biden. He is at parity with DeSantis and Noem in that regard.

    ALT
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  • tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    I haven't read the full text myself but it looks sympathetic:

    "Navigating an unfamiliar world – Parents' experiences of having a child with post COVID-19"

    Free full text:
    https://www.sciencedirect.com/science/article/pii/S0882596324002057

    Hashtags:
    @longcovid
    #LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC #COVIDBrain

    @covid19 #Coronavirus
    #COVIDー19 #COVID19 #COVID #COVID_19 #SARSCoV2
    #LongCovidKids #LCKids

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/

    "The parents try to navigate in an unfamiliar world, searching for someone to believe in them and their child, and describe the relief when their child's condition is confirmed. The findings also demonstrate the depth of suffering, not only for the child but also for the whole family."

    #LCKids #LongCovidKid #LongCovidKids
    @longcovid @covid19 #LongCovid #PwLC #PostCovidSyndrome #LC #PASC #postcovid
    #CovidBrain

    SamYourEyes , to random
    @SamYourEyes@mas.to avatar
    _L1vY_ , to random
    @_L1vY_@mstdn.social avatar

    I've said it before but I'll say it again.
    It's not that everyone I know who had has developed terrible new medical issues.
    It's that everyone I know who has developed terrible new medical issues recently had Covid.
    And in every case I'm thinking of, it's become a health crisis within about three months of their most recent Covid bout. (Usually not a bad bout, either.)

    VeeRat , to random
    @VeeRat@zeroes.ca avatar

    The latest news roundup from @jessicawildfire

    Top story: Banning masks because they supposedly hide a person's identity is just another excuse.

    "[T]here's little evidence that any kind of medical mask does anything to conceal your identity. A report in Nature found that even sunglasses do a better job than a surgical mask or an N95 respirator...The Department of Homeland Security even tested their tools and found they still work 96 percent of the time when the public masks."

    https://www.okdoomer.io/masks-dont-work/

    edsuom , to random
    @edsuom@hachyderm.io avatar

    To those who follow this account for #Covid rants and politely tolerate my posts about the wonderful and elegant #Python programming language I’ve used almost daily for over a decade: The #pycon2024 conference required masks because they apparently haven’t stopped caring about the people behind the keyboards.

    Yes, masks. In 2024. At a tech conference. It’s a beautiful thing.

    rchusid , to random
    @rchusid@med-mastodon.com avatar

    Biden criticized for minimal funding for Long Covid after his Covid policies have led to increase in those suffering from Long Covid.

    https://thehill.com/policy/healthcare/4682533-long-covid-advocates-hammer-biden-over-minimal-funding-in-budget-request/

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