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Post summarises this paper:
New Publication by Solve Ramsay Grant Researcher Dr. Deborah Duricka Studies Efficacy of Stellate Ganglion Block in Reducing Post-Exertional Malaise and Improving Sleep and Neurological Function
"Welcome to the 107th Emerge Australia Research Digest, where we delve into recent research and media releases shaping our understanding of ME/CFS and #LongCOVID..."
The summaries are also available in audio form at link
“The idea of rehabilitation will have to be completely rethought for this illness” – Qualitative results of an online survey on patients’ experiences with inpatient rehabilitation for #postCOVID19 condition ( #longCOVID )
'(50 %) reported that their state of health deteriorated, mainly because of strength or endurance training'
'learning strategies to avoid deterioration in their state of health due to overexertion, the so-called pacing, should be the core treatment goal for patients affected by PEM.'
"22.5% did not recover by 90 days post infection". "Recovery within 3 months was less likely in women and those with preexisting cardiovascular disease"
"No significant multivariable-adjusted associations [for non-recovery] were observed for age, educational attainment, smoking history, obesity, diabetes, chronic kidney disease, asthma, chronic obstructive pulmonary disease, or elevated depressive symptoms. Results were similar for reinfections"
"Passive transfer of IgG from patients to mice led to increased sensitivity & pain, mirroring patient-reported symptoms. Similarly, mice injected with IgG showed loss of balance & coordination, reflecting donor-reported dizziness"
Opinion piece asking why we overlook bad things, "especially in this scientific and technological age, when we’ve never been more capable of understanding and addressing them".
It’s been a particularly difficult week where I’ve been let down by a number of people who I thought had my back… and the rampant ableism in society is wearing on me.
I revisited one of the first articles I wrote about being disabled & chronically ill… and am saddened that nothing has changed. Things haven’t improved and if anything people are LESS tolerant & more ableist now than a year ago.
It all started when someone said to me “you’ve been sick for years - just die already”. Whenever I think of that statement I find myself wondering if people would have EVER said something like that before Covid. Many may have thought it - but would they verbalize it?
The pandemic is fueling hatred of disabled and chronically ill people to the point where they will say the cruelest things without a second thought - and it’s leading nowhere good.
The Organization for Economic Cooperation & Development has published a paper, The impacts of #longCOVID across OECD countries, which looks the burden of Long #Covid including how it may impact productivity & the labour force.
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"The economic and social welfare costs of #longCOVID are dramatic: Even excluding the direct costs of health care, long #COVID is likely costing OECD countries as much as $864 billion - $1.04 trillion USD per year due to reductions in quality of life and labour force participation."
The NC Governor vetoed the anti-mask bill, and now it will go back to the House of Rep who could over-ride that. We cannot have that. It does not protect maskers.
I put info why, including a sample email and the email addresses of the house that you can copy and paste and send out ASAP
NIH has "failed to publish any research that furthers our understanding of the underlying cause of long Covid and the vast majority of clinical trials they’ve launched are for drugs that people have already tried and found unhelpful."
"NIH should reevaluate how it allocates funding to diseases and base allocations on objective patient burdens."
@ahimsa_pdx@mecfs@longcovid what they should do is investigate pathology properly and subtype patients. So as to figure out why 10% of patients responded to a particular drug in a particular trial. Instead of wasting millions.
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"We found that PCC* participants with poorer sleep quality had worse cognitive performance in some domains (verbal and visual memory and processing speed), with a moderating effect on quality of life, cognitive reserve, and everyday memory failure."