"Passive transfer of IgG from patients to mice led to increased sensitivity & pain, mirroring patient-reported symptoms. Similarly, mice injected with IgG showed loss of balance & coordination, reflecting donor-reported dizziness"
"Post-exertional malaise (PEM) isn’t due to laziness or deconditioning." - Clayton Powers, DPT Do your symptoms worsen when you push yourself beyond your energy threshold? Powers explains what PEM is in this short video: https://youtu.be/UkS6L3Klc00
"We have shown that 24% of people post-COVID-19 may have very low oxygen levels in the brain and that this hypoxia relates to reduced neurological function and quality of life."
CPET performed in a well matched cohort with and without acute Covid. "Patients with #COVID19 peculiarly showed a high degree of VE inefficiency as signaled by a marked increase in VE/VCO2 slope"
"data strongly suggest an important role of NK cells in orchestrating the pathophysiology of different phases of COVID-19 and of some post-vaccination side effects."
If you’re living with ME/CFS, Long COVID or want to volunteer as a ‘healthy control’ for medical research studies, signing up and becoming an AusME Registry participant is the single easiest way to become involved in research! Learn more today
Opinion piece asking why we overlook bad things, "especially in this scientific and technological age, when we’ve never been more capable of understanding and addressing them".
It’s been a particularly difficult week where I’ve been let down by a number of people who I thought had my back… and the rampant ableism in society is wearing on me.
I revisited one of the first articles I wrote about being disabled & chronically ill… and am saddened that nothing has changed. Things haven’t improved and if anything people are LESS tolerant & more ableist now than a year ago.
It all started when someone said to me “you’ve been sick for years - just die already”. Whenever I think of that statement I find myself wondering if people would have EVER said something like that before Covid. Many may have thought it - but would they verbalize it?
The pandemic is fueling hatred of disabled and chronically ill people to the point where they will say the cruelest things without a second thought - and it’s leading nowhere good.
Trial by Error by David Tuller: Athlete Oonagh Cousins on the Lightning Process
A conversation with world-class rower Oonagh Cousins who got long Covid and whose story has been told by the BBC.
The BBC also covered her negative experience with the contested alternative treatment Lightning Process which she says is exploiting people.
The Organization for Economic Cooperation & Development has published a paper, The impacts of #longCOVID across OECD countries, which looks the burden of Long #Covid including how it may impact productivity & the labour force.
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"The economic and social welfare costs of #longCOVID are dramatic: Even excluding the direct costs of health care, long #COVID is likely costing OECD countries as much as $864 billion - $1.04 trillion USD per year due to reductions in quality of life and labour force participation."
The NC Governor vetoed the anti-mask bill, and now it will go back to the House of Rep who could over-ride that. We cannot have that. It does not protect maskers.
I put info why, including a sample email and the email addresses of the house that you can copy and paste and send out ASAP
The Australian ME/CFS and Long COVID (AusME) Registry is an online study of individuals aged 12yrs+ with ME/CFS or Long COVID, as well as healthy volunteers.
"Utilizing our novel metabolic modeling method, GPMM [Genome-wide knockout analyses], we identified the key metabolic irregularities in patients with ME/CFS and Long COVID, notably the downregulation of the alanine and aspartate metabolism pathway, and the arginine and proline metabolism pathway."