It’s been a particularly difficult week where I’ve been let down by a number of people who I thought had my back… and the rampant ableism in society is wearing on me.
I revisited one of the first articles I wrote about being disabled & chronically ill… and am saddened that nothing has changed. Things haven’t improved and if anything people are LESS tolerant & more ableist now than a year ago.
It all started when someone said to me “you’ve been sick for years - just die already”. Whenever I think of that statement I find myself wondering if people would have EVER said something like that before Covid. Many may have thought it - but would they verbalize it?
The pandemic is fueling hatred of disabled and chronically ill people to the point where they will say the cruelest things without a second thought - and it’s leading nowhere good.
Trial by Error by David Tuller: Athlete Oonagh Cousins on the Lightning Process
A conversation with world-class rower Oonagh Cousins who got long Covid and whose story has been told by the BBC.
The BBC also covered her negative experience with the contested alternative treatment Lightning Process which she says is exploiting people.
The Organization for Economic Cooperation & Development has published a paper, The impacts of #longCOVID across OECD countries, which looks the burden of Long #Covid including how it may impact productivity & the labour force.
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"The economic and social welfare costs of #longCOVID are dramatic: Even excluding the direct costs of health care, long #COVID is likely costing OECD countries as much as $864 billion - $1.04 trillion USD per year due to reductions in quality of life and labour force participation."
The NC Governor vetoed the anti-mask bill, and now it will go back to the House of Rep who could over-ride that. We cannot have that. It does not protect maskers.
I put info why, including a sample email and the email addresses of the house that you can copy and paste and send out ASAP
The Australian ME/CFS and Long COVID (AusME) Registry is an online study of individuals aged 12yrs+ with ME/CFS or Long COVID, as well as healthy volunteers.
NIH has "failed to publish any research that furthers our understanding of the underlying cause of long Covid and the vast majority of clinical trials they’ve launched are for drugs that people have already tried and found unhelpful."
"NIH should reevaluate how it allocates funding to diseases and base allocations on objective patient burdens."
NIH Director Monica Bertagnolli ( @NIHDirector ) comments last week at the NIH ACD (Advisory Committee to the Director) Meeting on Long COVID & RECOVER
"Long Covid and similar energy-limiting illnesses cause a range of health problems which result in long-term sickness absence and long-term unemployment in an era of workforce shortage."
"(Contd) The variability of the condition and of employer attitudes, severity of impact on daily life and work, and the fluctuating nature of the condition pose the question of how to manage a sustained return to work."
"The aim of this meta-analysis is to describe objective cognitive impairment in individuals with non-severe (mild or moderate) #SARSCoV2 cases in the post-acute stage of infection”
"Significantly increased Cho concentrations & decreased NAA/Cho were found in the CCS in the older #postCOVID19 subjects"
"may be related to the microstructural reorganization in the corpus callosum (also reported in diffusion measurements) rather than increased membrane turnover"
It's so good to see a televised broadcast with a #scientist confirming that each #covid infection will increase the risk of long-term effects, typically #longcovid but not just that. It is exhausting to people like me who are #masking very much because we know that IN THE FLESH, and we don't see anything or anyone anywhere validating our experience: not out of solidarity but as a scientific truth? I have to justify myself EVERY DAY 😷.! @longcovid https://www.youtube.com/watch?v=heT5myyBkNA
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"SARS-CoV-2 provokes persistent long-term brain metabolic changes on brain FDG PET in the selected population of patients with prolonged long COVID symptoms, without progressive worsening of the hypometabolisms."
"our study shows widespread reductions in cerebral blood oxygen levels in PCS that are related to symptoms of daytime dysfunction and cognitive impairment (contd)"
"(Contd) Changes in oxygen metabolism and blood perfusion may serve as an adaptive mechanism to mediate brain vascular damage and/or as a mode of maintaining normal daily functioning."
what the fuck do we do. theyve destroyed communication in gaza. they keep bombing. we don't even know how bad it is. if it was that bad when the world was watching. Jesus.
"But if the plight of adults with long COVID remains poorly understood, the millions of children who have it worldwide are practically invisible, their suffering — and the formative years they're losing to this disease — obscured by the myths that COVID is "harmless" for kids and the pandemic is "over".