oftencalledcathy , to longcovid group
@oftencalledcathy@mastodon.ie avatar

This was the week I learned about ExWell Medical, an exercise programme that older people are referred to by their GPs often after covid infections. The programme has an induction that includes baseline fitness test with no monitoring of heart rate, blood pressure etc (according to a friend). Surely this is contraindicated for etc? @longcovid

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  • vmbrasseur , to random
    @vmbrasseur@social.vmbrasseur.com avatar

    Another day, another friend who has to go on due to .

    You or your loved ones could be next. The pandemic isn't over. Stop the spread. Wear a mask.

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar
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  • ahimsa_pdx , to longcovid group
    @ahimsa_pdx@disabled.social avatar

    This story - "A life derailed by long COVID" - is from 2023 but I just found it:
    https://virginiamercury.com/2023/09/06/a-life-derailed-by-long-covid/

    Classic story of trying to push through symptoms, getting worse, and finally meeting ME/CFS diagnostic criteria:

    "Pretty soon, I was feeling worse than I had during my acute infection. But I tried to carry on and returned to my job…"

    @mecfs @longcovid

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  • grheavyroller , to random
    @grheavyroller@mastodon.social avatar

    In @violetblue 's Cybersecurity Roundup, the first OpenSSH vuln discovered in almost 20 years, a look inside a violent gang's crypto-theft home invasion spree, an Australian man was busted and charged for ‘Evil Twin’ wifi airline attacks, the new Cyberpunk Rhapsody album, and advanced notice of an upcoming livestream with Physics Girl (Dianna Cowern) who suffers from and .

    These roundups are free and always worthy of support:

    https://www.patreon.com/posts/107300703

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar
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  • tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar
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  • tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar
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  • tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar
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  • tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar
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  • tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    New US research:
    Case-control study on post-COVID-19 conditions [on] potential risk factors

    Free
    https://www.sciencedirect.com/science/article/pii/S2589004224016316

    "Our findings suggest severity of acute infection & history of CPD, , (), or as risk factors for "

    @longcovid

    @covid19

    @mecfs
    1/

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  • tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/

    New US research:

    Case-control study on post-COVID-19 conditions reveals severe acute infection and chronic pulmonary disease as potential risk factors

    Free:

    https://www.sciencedirect.com/science/article/pii/S2589004224016316

    Hashtags:
    @longcovid

    @covid19 @mecfs

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    Subjective brain fog: a four-dimensional characterization in 25,796 participants

    https://pubmed.ncbi.nlm.nih.gov/38911226/

    "28.2% reported experiencing brain fog, who were generally older (mean brain fog 35.7 ± 11.9 years vs. 32.8 ± 11.6 years, p < 0.0001) and more likely to be female (OR = 1.2, p < 0.001)"

    Hashtags:
    @longcovid

    @covid19

    1/

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    Post-acute sequelae of infection () in older adults

    https://link.springer.com/article/10.1007/s11357-024-01227-8

    "At this point, we can mostly admit we “know we don’t know much” about PASC in older adults. Part of the reason for the lack of knowledge is the general limitations in the literature on "

    Hashtags:

    @longcovid


    @covid19

    ahimsa_pdx , to longcovid group
    @ahimsa_pdx@disabled.social avatar

    New video on PEM (post-exertional malaise) from the Bateman Horne Center, second video in "the Basics" series. About 3 1/2 minutes long.

    https://www.youtube.com/watch?v=UkS6L3Klc00

    Roughly half of Long Covid patients meet the ME/CFS criteria which means they will also have PEM.

    @mecfs @longcovid

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    From China:

    Faecal microbiota transplantation for sleep disturbance in post-acute COVID-19 syndrome

    https://www.cghjournal.org/article/S1542-3565(24)00542-1/abstract

    "At week 12, more patients in the FMT than the control group had insomnia remission (37.9% vs 10.0%; p=0.018). (contd)”

    Hashtags:

    @longcovid
    @covid19

    1/

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/

    “(Contd) The FMT group showed a decrease in ISI score (p<0.0001), PSQI (p<0.0001), GAD-7 (p=0.0019), ESS (p=0.0057) and blood cortisol concentration (p=0.035) from baseline to week 12, but there was no significant change in the control group."

    Hashtags:

    @longcovid

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    From Canada:

    Differential Gene Expression in the Upper Respiratory Tract following Acute COVID-19 Infection in Ambulatory Patients That Develop Long COVID

    https://www.mdpi.com/2076-0817/13/6/510

    ====•
    Hashtags:

    @longcovid


    @covid19 @novid @novid @auscovid19

    1/

    ahimsa_pdx , to longcovid group
    @ahimsa_pdx@disabled.social avatar

    Here's the latest News in Brief from the Science for ME forum, for week starting June 24:

    https://www.s4me.info/threads/news-in-brief-june-2024.38870/#post-540605

    This summary includes media coverage, research news, patient advocacy, coming events, and more.

    @mecfs @longcovid

    stuffjolikes , to random
    @stuffjolikes@climatejustice.social avatar

    Feel like a proud relative.. new podcast on launched by a good friend and colleague Pat Porter - in this first episode she talks with Tash Willmore and her experiences of living with - more soon to come on other topics like and much more https://open.spotify.com/episode/5fSVc7TSEU3T5ACOTxRsGf?si=tGAOQ6bKTa-PwnrXd2-DGw

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    US research:

    Habitual physical activity and

    https://t.ly/kLkaJ

    "Factors predictive of poor PA [physical activity] recovery were higher pre-diagnosis PA, shortness of breath and fatigue during acute illness, and fatigue chronically”

    Hashtags:
    @longcovid


    @covid19 @novid @novid @auscovid19

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar
    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/

    2/

    "The Long-COVID group showed fewer correct responses, made more task attempts, and invested more time in the iVR-based OLM task than the Control group. Delayed memory was more severely altered than immediate memory in Long-COVID participants."

    =========
    Hashtags:
    @longcovid

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    Short- & long-term neuropsychiatric outcomes in in South Korea & Japan

    https://www.nature.com/articles/s41562-024-01895-8

    “A range of conditions including Guillain-Barré syndrome/cognitive deficit/insomnia/anxiety disorder/encephalitis/ischaemic stroke/mood disorder exhibited a pronounced increase in long-term risk”

    @longcovid


    @covid19 @novid

    Frieke72 , to longcovid group Dutch
    @Frieke72@mastodon.social avatar

    Daar is het nieuws; de eerste polikliniek gaan over enkele weken open. UMC Rotterdam Maastricht en Amsterdam.
    Later de andere UMC's.
    Vraag patiëntenspreiding te beantwoorden.
    Brabant heeft geen umc bij mijn weten.. Benieuwd 😏
    Link naar volledige bericht Minister MZ Dijkstra op Instagram
    https://www.instagram.com/reel/C84a5exJhav/?igsh=MThyMnN3Y2c4aXI3MQ==
    @longcovid @LongcovidNieuws

    tomkindlon , to ChronicIllness group
    @tomkindlon@disabled.social avatar
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  • tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    From ABC (Australia)

    "Not everyone who uses a wheelchair is paralysed. This is what ambulatory users want you to know"

    https://www.abc.net.au/news/2024-06-18/ambulatory-wheelchair-mobility-aid-users/103937484

    Here's the extract where the person with ME/CFS talks about her experiences

    Hashtags:
    @chronicillness @spoonies @disability @longcovid @mecfs





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