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tomkindlon

@tomkindlon@disabled.social

95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.

With ME/CFS 35 years, severely affected 29 years. Health has deteriorated post Covid (March 2022).

Irish ME/CFS Association* trustee 26 years. 26 publications in peer-reviewed journals.

MEpedia entry which has links to my social media accounts (among other things): https://me-pedia.org/wiki/Tom_Kindlon #ChronicFatigueSyndrome #MECFS #PwME #fedi22 *IrishMECFSAssociation@mastodon.ie

This profile is from a federated server and may be incomplete. For a complete list of posts, browse on the original instance.

tomkindlon , to AusCOVID19 group
@tomkindlon@disabled.social avatar

Press release:
“Risk factors for revealed”
https://www.eurekalert.org/news-releases/1048330

“Although studies have suggested many patients with long experience mental health challenges, we did not find that depressive symptoms prior to infection were a major risk factor for long COVID”

@longcovid


@covid19 @auscovid19

tomkindlon , to ChronicIllness group
@tomkindlon@disabled.social avatar

Oonagh Cousins & the dangers of the Lightning Process

Latest Post-Exertional Mayonnaise interview:

https://youtu.be/sUi9Wx9jp3Q?si=eeKxpjGr2X1G-Wjp

From Science for ME update: “An insightful conversation with Oonagh Cousins, former professional rower with team GB ‘about her personal experience of , processing guilt and grief, and her brief engagement with the Lightning Process..’

@longcovid
@mecfs
@chronicillness
@spoonies

video/mp4

tomkindlon , to AusCOVID19 group
@tomkindlon@disabled.social avatar

ABC News (Australia): Too many children with are suffering in silence

https://t.ly/SrKjj

"One of the things that shocks Dr Scoullar most, though, is how many of her patients have struggled with other doctors,especially paediatricians”

Hashtags:
@longcovid @covid19 @novid @auscovid19

tomkindlon , to longcovid group
@tomkindlon@disabled.social avatar

Childhood, interrupted: 12-year-old Toby's life with

https://www.theguardian.com/society/article/2024/jun/12/childhood-interrupted-12-year-old-tobys-life-with-long-covid

111,816 children in England & Scotland are estimated to have Long Covid. Toby & his family describe the harsh reality & impact of this disease. Dr Binita Kane says the NHS is not keeping up with the massive challenge Long represents. The article also mentions reinfection as an elephant in the room.

@longcovid

@covid19
@novid

tomkindlon , to AusCOVID19 group
@tomkindlon@disabled.social avatar

From: Long Covid Advocacy 💙
@LongCovidAdvoc on the bird site :

🏳️‍🌈It's & thank you to Taipai Queen for talking about the intersection with

"It's never too late to start wearing your mask again"

😷Protect Others Protect Yourself 😷

@longcovid

@covid19
@novid
@auscovid19

video/mp4

tomkindlon , to NoVID
@tomkindlon@disabled.social avatar

From David Tuller DrPH

“In a recent piece Betsy Ladyzhets [from The Sick Times] reports about problems with RECOVER based on documents obtained through the Freedom of Information Act. We talked the other day about her findings.”

https://virology.ws/2024/06/13/trial-by-error-betsy-ladyzhets-on-problems-with-nihs-recover-initiative/

@longcovid


@novid

1/

tomkindlon OP ,
@tomkindlon@disabled.social avatar

2/

"Ladyzhets recently wrote a new article about RECOVER, published in The Sick Times
as well as STAT, based on documents she received from NIH through the Freedom of Information Act. We spoke the other day about what she found out".


@longcovid

tomkindlon , to AusCOVID19 group
@tomkindlon@disabled.social avatar

Interesting German paper:

Persistent symptoms & clinical findings in adults with post-acute sequelae of / syndrome in the second year after acute infection: population-based, nested case-control study

https://www.medrxiv.org/content/10.1101/2024.05.22.24307659v1

@longcovid


@covid19 @novid @auscovid19

1/

tomkindlon OP ,
@tomkindlon@disabled.social avatar

2/
"This nested population-based case-control study demonstrates the majority of PCS cases do not recover in the second year of their illness, with patterns of reported symptoms remaining essentially similar, nonspecific & dominated by fatigue, exercise intolerance & cognitive complaints”

Hashtags:
@longcovid @covid19 @novid

tomkindlon , to AusCOVID19 group
@tomkindlon@disabled.social avatar

Growth Differentiation Factor-15 Is Considered a Predictive Biomarker of in Non-hospitalized Patients

https://t.ly/eYkfB

"Elevated serum GDF-15 levels in acute phase of may act as a predictive biomarker with onset of long "

Sample sizes very small

Hashtags:

@longcovid

@covid19 @novid @auscovid19

tomkindlon , to longcovid group
@tomkindlon@disabled.social avatar

Circulating microaggregates as biomarkers for the

https://t.ly/0Eseu

"We report on a patient suffering from fatigue, post exertional malaise, pain & neurological symptoms as a consequence of the second infection. Using live confocal microscopy on native whole blood samples we detected microaggregates of thrombocytes, leukocytes and plasma proteins in peripheral blood”

@longcovid

tomkindlon , to AusCOVID19 group
@tomkindlon@disabled.social avatar

Plasma taurine level is linked to symptom burden & clinical outcomes in condition

https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0304522

"Increase in taurine levels during the transition to convalescence were associated with a reduction in adverse events independent of comorbidities & acute severity"

Hospitalised patients.

@longcovid
@covid19 @auscovid19

tomkindlon , to longcovid group
@tomkindlon@disabled.social avatar

New-ish US [Mayo Clinic] study:

Pro Inflammatory Cytokines Profiles of Patients With Long Differ Between Variant Epochs

Free:
https://journals.sagepub.com/doi/10.1177/21501319241254751

"When stratified by variant epoch, patients with early epoch Long COVID had persistently elevated peripheral pro-inflammatory cytokine levels when compared to later epoch . (contd)"

@longcovid

@covid19

1/

tomkindlon OP ,
@tomkindlon@disabled.social avatar

2/

"(Contd) Patients with Long COVID have similar clusters of symptoms across epochs, suggesting that the underlying pathology is independent of the peripheral cytokine signature."

Hashtags:
@longcovid

@covid19
@novid
@auscovid19

tomkindlon , to AusCOVID19 group
@tomkindlon@disabled.social avatar

New Australian government $800,000 grant for research study investigating patients with , and ME/CFS

Press release:
https://baker.edu.au/news/institute-news/long-covid-funding

@longcovid
@auscovid19 @mecfs
@pots

Institute news Erin Howden Associate Professor Erin Howden is one of 12 researchers nationally to be awarded a Medical Research Future Fund (MRFF) grant aimed at improving the lives of people with long Covid. The grants are the first investments from a $50 million commitment from the Federal Government to generate better evidence on the effective management of long COVID in the Australian community. Fatigue, dizziness, tachycardia and brain fog are among the most commonly described symptoms of long Covid/post-acute sequalae of Covid-19 (PASC). These symptoms are also commonly experienced by individuals affected by postural orthostatic tachycardia syndrome (POTS) and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). There’s been considerable interest about the potential overlap between PASC, POTS and ME/CFS, but there’s been no detailed investigation of the shared pathophysiology of these conditions. A/Prof Howden’s $800,000 grant will allow her to combine MRI scans with direct recordings of sympathetic nerve activity to understand how the brain is regulating blood pressure during stressors like orthostatic challenge and exercise in patients with long Covid, POTS and ME/CFS. By understanding the mechanisms contributing to long COVID, she hopes to be able to direct treatment strategies that alleviate or resolve symptoms to restore the quality of life for people with long Covid.
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    • tomkindlon OP ,
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    2/

    Press release:

    The Australian Government is investing nearly $14.5 million into research to improve our understanding of the impacts of on individuals, the community & the Australian health system.

    https://www.health.gov.au/ministers/the-hon-mark-butler-mp/media/15-million-in-research-for-long-covid

    Hashtags:
    @longcovid

    @covid19
    @novid
    @auscovid19

    tomkindlon , to NoVID
    @tomkindlon@disabled.social avatar

    •First network meta-analysis of oral antiviral drugs effects on condition ( )

    •Early use of oral antiviral drugs in acute phase of has a protective effect against PCC

    •Nirmatrelvir-ritonavir may be a superior choice over molnupiravir on reducing risk of PCC

    Hashtags:
    @longcovid

    @covid19
    @novid

    1/

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/

    "Nine observational studies containing 866,066 patients were included, in which nirmatrelvir-ritonavir and molnupiravir were evaluated in eight and two studies respectively, with both drugs evaluated in one study. Pair-wise meta-analysis showed that early oral antiviral drugs reduced PCC risk (RR 0.77, 95% CI 0.68–0.88)."

    @longcovid

    @novid
    @auscovid19

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    ‪3/‬
    ‪Early use of oral antiviral drugs and the risk of post COVID-19 syndrome: a systematic review and network meta-analysis‬

    ‪https://www.journalofinfection.com/article/S0163-4453(24)00124-5/fulltext‬

    Hashtags:

    @longcovid


    @covid19 @novid @auscovid19

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    @ChiaraChiarel

    Thanks for letting me know.

    There are brackets in the link which I think may confuse the software.
    This should work:
    https://t.ly/J3ivM

    @longcovid @covid19 @novid @auscovid19

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    From the Netherlands

    Whole blood transcriptome in long patients reveals association with lung function and immune response

    https://www.jacionline.org/article/S0091-6749(24)00566-9/fulltext

    "In this study we clustered the transcriptome of patients into two distinct clusters & showed differences in innate and adaptive immune activation and pulmonary function between those clusters"

    Hashtags:
    @longcovid

    @covid19

    tomkindlon , to NoVID
    @tomkindlon@disabled.social avatar

    A Holistic Analysis of Symptom Profiles among People with -19 in India: A Prospective 1-Year Follow-Up Study

    https://www.sciencedirect.com/science/article/pii/S2213398424001490

    "Out of 350 [hospitalised] participants, 148 respondents (42.3%) recovered after 1 year of illness and 202 (57.7%) were still experiencing symptoms at the time of survey completion."

    Hashtags:
    @longcovid

    @covid19
    @novid

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    Comparing risk of post infection erectile dysfunction following SARS 2 stratified by acute and long , hospitalization status, and vasopressor administration

    https://www.nature.com/articles/s41443-024-00913-7

    "We found that patients with are at a higher risk of being diagnosed with ED than patients with only acute COVID, while there was no significantly increased risk for patients with more severe infection requiring hospitalization or vasopressors"

    @longcovid

    tomkindlon , to MECFS group
    @tomkindlon@disabled.social avatar

    INIM May 2024 Conference Videos are now available.

    Find this post here:
    https://us4.forward-to-friend.com/forward/preview?u=419072c88a85f355f15ab1257&id=ab6ab16c7e

    Alternatively INIM YouTube channel is here:
    https://www.youtube.com/@NSU_INIM/videos

    @mecfs @longcovid

    Institute for Neuro-Immune Medicine Center for Collaborative Research | Nova Southeastern University Dear <<First Name>>, Missed the cutting-edge presentations from this year's INIM Conference? No worries! We're thrilled to announce that the presentation videos from the 2024 INIM Conference are now available for viewing on YouTube! Dive into the latest insights, discoveries, and innovations in chronic illness. Tune in now and explore the wealth of knowledge shared by leading experts in the field! “Inflammation Derails Brain Homeostasis” - Theoharis Theoharides, BA, MS, MPhil, PhD, MD, FAAAAI | HERE “Neurovascular Dysregulation During Exercise in ME/CFS and Long COVID” - David Systrom, M.D. | HERE “Veterans' Sleep Needs” - Linda Chao, Ph.D. | HERE “Transforming ME/CFS Care: A Collaborative Approach - Jaime Seltzer, BS, MS” | HERE “Post Exertional Malaise (PEM): The Price of Exertion” - Lucinda Bateman, M.D. | HERE “Science-Based Supplementation in Chronic Disease - Irina Rozenfeld, DNP, MSHS, MSN, MBA, APRN, ANP-BC | HERE “Living with M.E: Specialized Gentle Yoga Inspired by my Own Experience - Shannon Williams | HERE “Nutrition for Gulf War Veterans” - 1st Lt. Dan Rice | HERE
    ALT
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    • tomkindlon , to AusCOVID19 group
    @tomkindlon@disabled.social avatar

    Conceptual framework of episodic disability in the context of Long COVID: Findings from a community-engaged international qualitative study

    Free:
    https://www.medrxiv.org/content/10.1101/2024.05.28.24308048v2

    Hashtags:
    @longcovid

    @covid19

    @auscovid19

    1/

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/
    "While pacing and energy conservation was a necessary strategy, participants also spoke of the consequences that pacing had on their ability to work, engage in social activities (having to decline at last minute depending on energy level, uncertainty of crashes).

    Pacing sometimes involved prioritization and sacrifice, scaling back their activities to the bare minimum to manage their challenges with daily activities. (contd)"

    @longcovid

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    3/

    "(Contd) While pacing was an essential skill for many, it was a constant balancing act , that also came at a cost on their productivity, satisfaction, and overall feelings of fulfillment"

    @longcovid

    @covid19

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    4/
    "Participants described tracking health trajectories using wearables and other assistive devices including apps, [t]rackers and wireless activity and heart rate monitors to identify potential triggers and learn limits to inform strategies of pacing"

    @longcovid

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    5/

    "A notable feature of episodic disability in the context of Long COVID in this study was PESE or PEM which transcended physical, cognitive and mental-emotional dimensions, highlighting the ability of the framework to encompass critical features of disability experienced in the context of "

    Hashtags:
    @longcovid

    @covid19

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    Nirmatrelvir-Ritonavir and Symptoms in Adults With Postacute Sequelae of #SARSCoV2 Infection: The STOP-PASC RCT

    https://jamanetwork.com/journals/jamainternalmedicine/fullarticle/2819901

    "The results of this randomized clinical trial showed that a 15-day course of NMV/r in a population of patients with #PASC was generally safe but did not demonstrate a significant benefit for improving select PASC symptoms in a mostly vaccinated cohort with protracted symptom duration"

    @longcovid
    #LongCovid #PwLC #postcovid #postcovid19 #LC #PostCovidSyndrome

    tomkindlon , to AusCOVID19 group
    @tomkindlon@disabled.social avatar

    A new definition for Long COVID that has been launched today by the National Academies in the US
    https://nap.nationalacademies.org/resource/27768/One_pager_Long_COVID_Definition.pdf

    5 pages of highlights from report:
    https://nap.nationalacademies.org/resource/27768/Long_COVID_Definition_Highlights.pdf

    Hashtags:
    @longcovid

    @covid19
    @novid
    @auscovid19

    1/

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/
    Infographic: Elements of the 2024 NASEM Long COVID Definition
    https://nap.nationalacademies.org/resource/27768/Long_COVID_Definition_infographic.pdf

    The main page which hosts further links is here, "Examining the Working Definition for ":
    https://www.nationalacademies.org/our-work/examining-the-working-definition-for-long-covid

    Hashtags:
    @longcovid

    @covid19

    @auscovid19

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    3/
    Figure S-1 Definition figure: 2024 NASEM Long COVID definition

    From:
    A new definition for Long COVID that has been launched today by the National Academies in the US
    https://nap.nationalacademies.org/cart/download.cgi?record_id=27768

    Hashtags:
    @longcovid

    @covid19
    @novid
    @auscovid19

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    4/
    "Frequencies of new onset symptoms (in )

    Among participants with , the most common symptoms were post-exertional malaise (87%), fatigue (85%), brain fog (64%), dizziness or lightheadedness (62%), GI (59%), & palpitations (57%)."

    From pp.46

    Hashtags:
    @longcovid

    @covid19
    @novid
    @auscovid19

    FIGURE 4 Frequencies of new onset symptoms. A figure that shows the frequency of new onset symptoms. It includes the following text which is a summary of what is in the figure NOTE: Among participants with Long COVID, the most common symptoms were post-exertional malaise (87 percent), fatigue (85 percent), brain fog (64 percent), dizziness or lightheadedness (62 percent), GI (59 percent), and palpitations (57 percent).
    ALT
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    • tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    5/
    "National Academies Issue New Broad Definition of Long COVID"

    On the Medscape website widely used by healthcare professionals

    https://www.medscape.com/viewarticle/national-academies-issue-new-broad-definition-long-covid-2024a1000ayc (may require free registration)

    Includes a statement from Drs Lucinda Bateman & Brayden Yellman

    Hashtags:
    @longcovid

    @covid19

    @auscovid19

    Medscape Medical News National Academies Issue New Broad Definition of Long COVID Miriam E. Tucker June 11, 2024 Add to Email Alerts 0 7 A new broadly inclusive definition of long COVID from the National Academies of Sciences, Engineering, and Medicine (NASEM) has been developed with the aim of improving consistency, documentation, and treatment for both adults and children. According to the 2024 NASEM definition of long COVID issued on June 11, 2024, "Long COVID is an infection-associated chronic condition that occurs after SARS-CoV-2 infection and is present for at least 3 months as a continuous, relapsing and remitting, or progressive disease state that affects one or more organ systems." People with long COVID may present with one or more of a long list of symptoms, such as shortness of breath, rapid heartbeat, extreme fatigue, post-exertional malaise, or sleep disturbance and with single or multiple diagnosable conditions, including interstitial lung disease, arrhythmias, postural orthostatic tachycardia syndrome (POTS), myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), diabetes, or autoimmune disorders. The condition can exacerbate preexisting health conditions or present as new ones.
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    • tomkindlon , to MECFS group
    @tomkindlon@disabled.social avatar

    What Are the Signs of 'Medical Gaslighting"?


    @chronicillness
    @spoonies @mecfs @longcovid
    @fibromyalgia

    What Are the Signs of 'Medical Gaslighting"? - Your provider continually interrupts you, won't let you elaborate and doesn't seem to be an engaged listener. - The provider minimizes or downplays symptoms, like questioning whether you have pain, or refuses to discuss your symptoms. - The provider won't order imaging or lab work to rule out or confirm a diagnosis. - You feel that the provider is rude, condescending or belittling. - Your symptoms are blamed on mental illness, but you are neither given a mental health referral nor screened for such illness.
    ALT
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    • tomkindlon , to MECFS group
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    @chronicillness
    @spoonies
    @disability
    @longcovid @mecfs

    tomkindlon , to MECFS group
    @tomkindlon@disabled.social avatar

    ‘s narrative activity study with Mayo Clinic has started. They are looking for people with or with to share their experiences.

    The survey will be open till June 23.

    Learn more & find out if you’re eligible here:
    https://surveys.mayoclinic.org/jfe/form/SV_2auWxMckjo7s04u

    @mecfs @longcovid

    tomkindlon , to MECFS group
    @tomkindlon@disabled.social avatar

    Summary of Potential Biological Mechanisms of , / (ME/CFS), & ()

    From a new, major National Academies report, "Long-Term Health Effects of "

    https://www.nationalacademies.org/news/2024/06/new-report-reviews-evidence-on-long-covid-diagnosis-risk-symptoms-and-functional-impact-for-patients

    @mecfs @longcovid

    tomkindlon , to MECFS group
    @tomkindlon@disabled.social avatar

    "Overlap in Common Symptoms on Long Covid, ME/CFS, and "

    From a new, major National Academies report, "Long-Term Health Effects of : Disability & Function Following Infection"

    https://www.nationalacademies.org/news/2024/06/new-report-reviews-evidence-on-long-covid-diagnosis-risk-symptoms-and-functional-impact-for-patients

    Hashtags:
    @longcovid

    @mecfs

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/

    "Complex, infection-associated chronic conditions affecting multiple body systems are not new, and Long COVID shares many features with such conditions as [ME/CFS], , and [ ]. Current theories about the pathophysiology of these conditions include immune dysregulation, neurological disturbances, cardiovascular damage, gastrointestinal dysfunction, metabolic issues, and mitochondrial dysfunction."

    @longcovid @mecfs

    tomkindlon , to MECFS group
    @tomkindlon@disabled.social avatar

    Extract from an ME Association piece
    https://meassociation.org.uk/2024/06/new-york-times-new-report-underscores-the-seriousness-of-long-covid/

    on a New York Times article on a new, major National Academies report, "Long-Term Health Effects of : Disability & Function Following Infection"

    https://www.nationalacademies.org/news/2024/06/new-report-reviews-evidence-on-long-covid-diagnosis-risk-symptoms-and-functional-impact-for-patients

    @longcovid

    @covid19
    #COVID @mecfs

    New York Times: New report underscores the seriousness of Long Covid June 6, 2024 One of the nation’s premier medical advisory organizations has weighed in on Long Covid with a 265-page report that recognizes the seriousness and persistence of the condition for millions of Americans. The National Academies said the condition could involve up to 200 symptoms, make it difficult for people to work and last for months or years. “The significant overlap in clinical presentation between Long Covid and ME/CFS and FM raises the question of common mechanisms that could be involved in the pathogenesis of these conditions and offers the potential to use past clinical and biomedical research to accelerate the understanding of pathomechanisms specific to Long Covid.” National Academies: Long-term Health Effects of Covid-19: Chapter 5.
    ALT
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    • tomkindlon , to MECFS group
    @tomkindlon@disabled.social avatar

    Extract from comments by Dr Binita Kane in this popular Guardian article today:

    "‘I could bench-press 100kg. Now, I can’t walk’: Lucy’s life with ."
    "Before the pandemic, Lucy Keighley ran a gym, worked as a personal trainer and went on gruelling, exhilarating runs. But after three and a half years of illness, she isn’t sure she will ever recover"

    https://www.theguardian.com/society/article/2024/jun/05/i-could-bench-press-100kg-now-i-cant-walk-lucys-life-with-long-covid

    @mecfs

    @longcovid

    She thinks there are parallels with the way myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome, is perceived. “The ME community have suffered terribly over the years,” she says. “As a doctor, I look back and I go: gosh, we were almost trained to believe that these conditions are psychological. That’s how we’re taught, because you can’t explain it. Anything that’s unexplained must be in a patient’s head, right? I look back and I go: wow, I was actually part of an infrastructure that taught us this wrongly. Not only do we not treat it, we are taught the wrong things about it.” Now, she is making up for it by spreading the word about long Covid, raising awareness, trying to understand it more and treating patients. With such a huge range of symptoms, treatment options vary, but in short she looks in the buckets and treats “what’s in front of me”.
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    • tomkindlon OP ,
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    2/
    This thorough Guardian article tells the story of Lucy Keighley and also presents a typical Long Covid patient story based on responses the Guardian has received from readers.

    @longcovid

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    People from ethnic minorities seeking help for : a qualitative study.

    Free:
    https://bjgp.org/content/early/2024/05/17/BJGP.2023.0631

    "Experiences of stigma and discrimination resulted in negative healthcare experiences and mistrust in healthcare, creating barriers to help-seeking. (contd)”

    @longcovid


    @covid19

    1/

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/

    “(Contd) Empathy, validation of experiences, and fairness in recognition and support of healthcare needs are required to restore trust in healthcare."

    @longcovid

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    New-ish research from Italy:

    Longitudinal Exploration of Cortical Brain Activity in Cognitive Fog: An EEG Study in Patients with and without Anosmia:

    Free full text:
    https://www.imrpress.com/journal/JIN/23/5/10.31083/j.jin2305105

    "The results revealed significant differences in the neurophysiological parameters of P300 & beta band rhythms in subjects affected by cognitive fog, and these alterations persist even 8 months after recovery from "

    @longcovid

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    I haven't read the full text myself but it looks sympathetic:

    "Navigating an unfamiliar world – Parents' experiences of having a child with post COVID-19"

    Free full text:
    https://www.sciencedirect.com/science/article/pii/S0882596324002057

    Hashtags:
    @longcovid
    #LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC #COVIDBrain

    @covid19 #Coronavirus
    #COVIDー19 #COVID19 #COVID #COVID_19 #SARSCoV2
    #LongCovidKids #LCKids

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/

    "The parents try to navigate in an unfamiliar world, searching for someone to believe in them and their child, and describe the relief when their child's condition is confirmed. The findings also demonstrate the depth of suffering, not only for the child but also for the whole family."

    #LCKids #LongCovidKid #LongCovidKids
    @longcovid @covid19 #LongCovid #PwLC #PostCovidSyndrome #LC #PASC #postcovid
    #CovidBrain

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