tomkindlon ,
@tomkindlon@disabled.social avatar

Extract from comments by Dr Binita Kane in this popular Guardian article today:

"‘I could bench-press 100kg. Now, I can’t walk’: Lucy’s life with ."
"Before the pandemic, Lucy Keighley ran a gym, worked as a personal trainer and went on gruelling, exhilarating runs. But after three and a half years of illness, she isn’t sure she will ever recover"

https://www.theguardian.com/society/article/2024/jun/05/i-could-bench-press-100kg-now-i-cant-walk-lucys-life-with-long-covid

@mecfs

@longcovid

She thinks there are parallels with the way myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome, is perceived. “The ME community have suffered terribly over the years,” she says. “As a doctor, I look back and I go: gosh, we were almost trained to believe that these conditions are psychological. That’s how we’re taught, because you can’t explain it. Anything that’s unexplained must be in a patient’s head, right? I look back and I go: wow, I was actually part of an infrastructure that taught us this wrongly. Not only do we not treat it, we are taught the wrong things about it.” Now, she is making up for it by spreading the word about long Covid, raising awareness, trying to understand it more and treating patients. With such a huge range of symptoms, treatment options vary, but in short she looks in the buckets and treats “what’s in front of me”.
ALT
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    • tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/
    This thorough Guardian article tells the story of Lucy Keighley and also presents a typical Long Covid patient story based on responses the Guardian has received from readers.

    @longcovid

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