longcovid group

IrishMECFSAssociation ,
@IrishMECFSAssociation@mastodon.ie avatar
halcionandon ,
@halcionandon@aus.social avatar

Applying for the is soul destroying and they keep adding more paperwork and meetings and bullshit just to wear us down.

I submitted my application in April. I’d been working on it for a year. They generally tell you yes or no without 6 weeks. Instead I didn’t get a reply, I was told the application process has changed and they needed more goals and more meetings. First I was told it was optional, now I’m told it isn’t. Which one is it??

I look like this most days and they want more bloody meetings!?

@ndis
@chronicillness
@mecfs
@longcovid

tomkindlon ,
@tomkindlon@disabled.social avatar

From US:

Prevalence & Risk Factors of [ ] in Adults with Systemic Autoimmune Rheumatic Diseases

Free:
https://t.ly/TUh8v

" was reported by…29.8%. Most common symptoms included fatigue (70.8%), loss of concentration/brain fog (68.5%) & joint pain/swelling (38.2%)”

Hashtags:
@longcovid

@covid19 @novid @novid

tomkindlon ,
@tomkindlon@disabled.social avatar

Hypothesis paper from Spanish researchers:

Hypocortisolemic ASIA: a vaccine- and chronic infection-induced syndrome behind the origin of long COVID and myalgic encephalomyelitis

Full paper now available:
https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1422940/full

@longcovid
@mecfs

ahimsa_pdx ,
@ahimsa_pdx@disabled.social avatar

Here's the latest News in Brief from the Science for ME forum, for week starting July 1:

https://www.s4me.info/threads/news-in-brief-july-2024.39237/#post-541568/

This summary includes media coverage, research news, patient advocacy, coming events, and more.

@mecfs @longcovid

tomkindlon ,
@tomkindlon@disabled.social avatar
IrishMECFSAssociation ,
@IrishMECFSAssociation@mastodon.ie avatar
tomkindlon ,
@tomkindlon@disabled.social avatar
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  • tomkindlon ,
    @tomkindlon@disabled.social avatar

    Bateman Horne Center

    🌻Summer holidays can require communicating needs & boundaries. We created “Chronic Illness: What I Want You to Know” to assist you.

    🤝Share this customizable resource with your loved ones to help improve expectations & understanding. ➡

    https://bit.ly/3Gez76E

    @longcovid
    @mecfs

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  • tomkindlon ,
    @tomkindlon@disabled.social avatar

    "ME/CFS and Long COVID Study Suggests Immune Cells Robbing the Body of Energy"

    Link in image:
    https://www.healthrising.org/blog/2024/05/18/chronic-fatigue-syndrome-long-covid-energy-sink/

    From American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society (AMMES) July
    e-newsletter

    @mecfs
    @longcovid

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  • IrishMECFSAssociation ,
    @IrishMECFSAssociation@mastodon.ie avatar
    EricCarroll ,
    @EricCarroll@zeroes.ca avatar

    ‘Visionary’ study finds inflammation, evidence of virus years after infection

    https://www.statnews.com/2024/07/03/long-covid-ucsf-study-finds-virus-presence-years-post-infection/

    > A "visionary" new study finds inflammation and evidence of the Covid virus years after initial infection. ... In some cases, the team followed patients up to 900 days, making it one of the longest studies of ... they report what looked like lingering virus in participants’ guts. Even those who’d had Covid but no continuing symptoms had different results than those who’d never been infected.

    @longcovid

    IrishMECFSAssociation ,
    @IrishMECFSAssociation@mastodon.ie avatar
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  • tomkindlon ,
    @tomkindlon@disabled.social avatar
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  • ahimsa_pdx ,
    @ahimsa_pdx@disabled.social avatar

    This story - "A life derailed by long COVID" - is from 2023 but I just found it:
    https://virginiamercury.com/2023/09/06/a-life-derailed-by-long-covid/

    Classic story of trying to push through symptoms, getting worse, and finally meeting ME/CFS diagnostic criteria:

    "Pretty soon, I was feeling worse than I had during my acute infection. But I tried to carry on and returned to my job…"

    @mecfs @longcovid

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