"Associations between Long #COVID and challenges related to housing stability and home accessibility highlight the need for systemic changes, financial support, and advocacy."
A new issue of our Patient-Generated Hypotheses Journal is out! It includes hypotheses on mechanisms & treatments for #LongCovid, ME/CFS, & POTS from patients & caregivers with diverse backgrounds, ranging from PhDs to self-taught patient experts
"Post-exertional malaise (PEM) isn’t due to laziness or deconditioning." - Clayton Powers, DPT Do your symptoms worsen when you push yourself beyond your energy threshold? Powers explains what PEM is in this short video: https://youtu.be/UkS6L3Klc00
CPET performed in a well matched cohort with and without acute Covid. "Patients with #COVID19 peculiarly showed a high degree of VE inefficiency as signaled by a marked increase in VE/VCO2 slope"
Trial by Error by David Tuller: Athlete Oonagh Cousins on the Lightning Process
A conversation with world-class rower Oonagh Cousins who got long Covid and whose story has been told by the BBC.
The BBC also covered her negative experience with the contested alternative treatment Lightning Process which she says is exploiting people.
NIH Director Monica Bertagnolli ( @NIHDirector ) comments last week at the NIH ACD (Advisory Committee to the Director) Meeting on Long COVID & RECOVER
"Increase in taurine levels during the transition to convalescence were associated with a reduction in adverse events independent of comorbidities & acute #COVID19 severity"
"Out of 350 [hospitalised] participants, 148 respondents (42.3%) recovered after 1 year of illness and 202 (57.7%) were still experiencing symptoms at the time of survey completion."
"The results of this randomized clinical trial showed that a 15-day course of NMV/r in a population of patients with #PASC was generally safe but did not demonstrate a significant benefit for improving select PASC symptoms in a mostly vaccinated cohort with protracted symptom duration"
on a New York Times article on a new, major National Academies report, "Long-Term Health Effects of #COVID19: Disability & Function Following #SARSCoV2 Infection"
"The results revealed significant differences in the neurophysiological parameters of P300 & beta band rhythms in subjects affected by cognitive fog, and these alterations persist even 8 months after recovery from #Covid19"