longcovid group

oftencalledcathy ,
@oftencalledcathy@mastodon.ie avatar

This was the week I learned about ExWell Medical, an exercise programme that older people are referred to by their GPs often after covid infections. The programme has an induction that includes baseline fitness test with no monitoring of heart rate, blood pressure etc (according to a friend). Surely this is contraindicated for etc? @longcovid

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  • Frieke72 ,
    @Frieke72@mastodon.social avatar

    @oftencalledcathy it was a bit cynical response on this irresponsible way of testing. Analogy to Shoot them all and God will sort them out 🫣
    @longcovid

    ahimsa_pdx ,
    @ahimsa_pdx@disabled.social avatar

    @oftencalledcathy
    First of all, Yikes! 😬

    Second, is a "duel" task test a typo? I mean, it does often feel like I'm dueling with certain doctors, but I hope they don't make it a literal duel! ⚔️

    PS. They also offer a "cognative" test which is cause for concern…

    I don't care about spelling errors from regular folks - I make them too! But errors in official documents make me feel like they don't pay attention to details, so I worry that they also don't pay attention to patients?!

    @longcovid

    tomkindlon ,
    @tomkindlon@disabled.social avatar
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  • ahimsa_pdx ,
    @ahimsa_pdx@disabled.social avatar

    This story - "A life derailed by long COVID" - is from 2023 but I just found it:
    https://virginiamercury.com/2023/09/06/a-life-derailed-by-long-covid/

    Classic story of trying to push through symptoms, getting worse, and finally meeting ME/CFS diagnostic criteria:

    "Pretty soon, I was feeling worse than I had during my acute infection. But I tried to carry on and returned to my job…"

    @mecfs @longcovid

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  • tomkindlon ,
    @tomkindlon@disabled.social avatar

    New US research:
    Case-control study on post-COVID-19 conditions [on] potential risk factors

    Free
    https://www.sciencedirect.com/science/article/pii/S2589004224016316

    "Our findings suggest severity of acute infection & history of CPD, , (), or as risk factors for "

    @longcovid

    @covid19

    @mecfs
    1/

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  • tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/

    New US research:

    Case-control study on post-COVID-19 conditions reveals severe acute infection and chronic pulmonary disease as potential risk factors

    Free:

    https://www.sciencedirect.com/science/article/pii/S2589004224016316

    Hashtags:
    @longcovid

    @covid19 @mecfs

    wildwoila ,
    @wildwoila@aus.social avatar

    @tomkindlon
    Interesting! Great to see a study confirm anecdotal/survey evidence. Though worth noting that the sample size was too small to make any direct call on CFS: only one person had CFS before getting covid.

    @longcovid @covid19 @mecfs

    tomkindlon ,
    @tomkindlon@disabled.social avatar

    Subjective brain fog: a four-dimensional characterization in 25,796 participants

    https://pubmed.ncbi.nlm.nih.gov/38911226/

    "28.2% reported experiencing brain fog, who were generally older (mean brain fog 35.7 ± 11.9 years vs. 32.8 ± 11.6 years, p < 0.0001) and more likely to be female (OR = 1.2, p < 0.001)"

    Hashtags:
    @longcovid

    @covid19

    1/

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/

    "Comorbidities included -19 (OR = 3.8, p < 0.0001), (OR = 2.4, p < 0.0001), and higher disability assessment scores (MIDAS) (+34.1%, all p < 0.0001)."

    Hashtags:
    @longcovid
    @covid19 @novid @novid @auscovid19

    tomkindlon ,
    @tomkindlon@disabled.social avatar

    Post-acute sequelae of infection () in older adults

    https://link.springer.com/article/10.1007/s11357-024-01227-8

    "At this point, we can mostly admit we “know we don’t know much” about PASC in older adults. Part of the reason for the lack of knowledge is the general limitations in the literature on "

    Hashtags:

    @longcovid


    @covid19

    BruceMirken ,
    @BruceMirken@mas.to avatar

    @tomkindlon @longcovid @covid19

    Anyone got a link or copy of the full article? The abstract is pretty minimal.

    ahimsa_pdx ,
    @ahimsa_pdx@disabled.social avatar

    New video on PEM (post-exertional malaise) from the Bateman Horne Center, second video in "the Basics" series. About 3 1/2 minutes long.

    https://www.youtube.com/watch?v=UkS6L3Klc00

    Roughly half of Long Covid patients meet the ME/CFS criteria which means they will also have PEM.

    @mecfs @longcovid

    tomkindlon ,
    @tomkindlon@disabled.social avatar

    From China:

    Faecal microbiota transplantation for sleep disturbance in post-acute COVID-19 syndrome

    https://www.cghjournal.org/article/S1542-3565(24)00542-1/abstract

    "At week 12, more patients in the FMT than the control group had insomnia remission (37.9% vs 10.0%; p=0.018). (contd)”

    Hashtags:

    @longcovid
    @covid19

    1/

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/

    “(Contd) The FMT group showed a decrease in ISI score (p<0.0001), PSQI (p<0.0001), GAD-7 (p=0.0019), ESS (p=0.0057) and blood cortisol concentration (p=0.035) from baseline to week 12, but there was no significant change in the control group."

    Hashtags:

    @longcovid

    tomkindlon ,
    @tomkindlon@disabled.social avatar

    From Canada:

    Differential Gene Expression in the Upper Respiratory Tract following Acute COVID-19 Infection in Ambulatory Patients That Develop Long COVID

    https://www.mdpi.com/2076-0817/13/6/510

    ====•
    Hashtags:

    @longcovid


    @covid19 @novid @novid @auscovid19

    1/

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/

    Study of 11 #LongCovid vs 34 healthy patients transcriptome at day 14 of Covid infection. "We identified 26 upregulated genes in patients experiencing long COVID. Dysregulated pathways including complement and fibrinolysis pathways and IL-7 upregulation."

    Hashtags:

    @longcovid
    #LongCovid #PwLC #PostCovidSyndrome #LC #PASC #postcovid

    ahimsa_pdx ,
    @ahimsa_pdx@disabled.social avatar

    Here's the latest News in Brief from the Science for ME forum, for week starting June 24:

    https://www.s4me.info/threads/news-in-brief-june-2024.38870/#post-540605

    This summary includes media coverage, research news, patient advocacy, coming events, and more.

    @mecfs @longcovid

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