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ehashman

@ehashman@cloudisland.nz

International florespondent, 🇨🇦 settler south of the medicine line, exhausted tech worker. Tea aficionado. Amateur botanist, naturalist, and radio operator. Godmother of cloudisland.nz ☁️🏝️ אין אלע גאסן וווּ מען גייט... Fighting severe ME/CFS. ♿

Public alt of @ehashman

This profile is from a federated server and may be incomplete. For a complete list of posts, browse on the original instance.

tomkindlon , to MECFS group
@tomkindlon@disabled.social avatar

Press release:
"Brain inflammation triggers muscle weakness after infections: In fruit flies and mice, scientists ID possible way to block muscle fatigue in , other diseases"

https://www.eurekalert.org/news-releases/1050851

Plausible this could also be relevant in ME/CFS

Hashtags:
@longcovid
@mecfs

@covid19

ehashman ,
@ehashman@cloudisland.nz avatar

@tomkindlon @longcovid @mecfs @covid19 anecdotal account: I've been on both classes of drugs (JAKS inhibitor and IL-6 inhibitor) for rheumatoid arthritis and didn't experience much affect on the ME/CFS. Tbh the TNF-a inhibitor that I'm on now has done a lot more, at least for brain fog and very slow physical improvements.

ehashman , to random
@ehashman@cloudisland.nz avatar

April 30, 1968: "University Calls in 1,000 Police to End Demonstration As Nearly 700 Are Arrested and 100 Injured;
Violent Solution Follows Failure of Negotiations" https://exhibitions.library.columbia.edu/exhibits/show/1968/bust

ehashman , to random
@ehashman@cloudisland.nz avatar

Seeing a lot of "UBI shouldn't mean you have to work" takes which are, imo, a weird misreading of "UBI gives people the freedom to do whatever work they want."

Just because people are calling this "work" doesn't mean they're talking about the same thing as subsistence labour. And by definition, a UBI isn't a UBI if it's means-tested, so if we're talking about a true UBI, this isn't really a concern.

ehashman OP ,
@ehashman@cloudisland.nz avatar

I think many of these takes come from a disability-adjacent place. But I actually disagree with this sentiment.

UBI is universal basic income. It is a lowest common denominator. People with disabilities need more resources than the basic minimum; in a world with UBI, I don't think disability grants, supports, or stipends should cease to exist. Relying on UBI as the sole support of disability, whether short or long-term, isn't enough. We must demand more.

ehashman , to random
@ehashman@cloudisland.nz avatar

Inevitably, a vuln caused by maintainer burnout and underresourcing is going to spark more arguments about how to pay maintainers (hopefully sustainably).

As a former maintainer, things I would have liked to consider working on projects full-time include:

  • a steady paycheque in line with industry salaries
  • guaranteed for at least 2 years of employment
  • with healthcare & other benefits
  • and I can't be the only maintainer.
ehashman , to random
@ehashman@cloudisland.nz avatar

employers: sorry, y'all don't get raises and we have to do layoffs because of "economic conditions"

the economic conditions: NASDAQ hits 52-week high as of 05/18 10:29AM

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