ehashman

tomkindlon , 2 days ago to MECFS group

Press release:
"Brain inflammation triggers muscle weakness after infections: In fruit flies and mice, scientists ID possible way to block muscle fatigue in #longCOVID, other diseases"

https://www.eurekalert.org/news-releases/1050851

Plausible this could also be relevant in ME/CFS

Hashtags:
@longcovid
#PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC #COVIDBrain @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@covid19 #COVIDー19 #SARSCoV2 #auscovid19

ehashman , 7 hours ago

@tomkindlon @longcovid @mecfs @covid19 anecdotal account: I've been on both classes of drugs (JAKS inhibitor and IL-6 inhibitor) for rheumatoid arthritis and didn't experience much affect on the ME/CFS. Tbh the TNF-a inhibitor that I'm on now has done a lot more, at least for brain fog and very slow physical improvements.

ehashman , 2 months ago to random

Seeing a lot of "UBI shouldn't mean you have to work" takes which are, imo, a weird misreading of "UBI gives people the freedom to do whatever work they want."

Just because people are calling this "work" doesn't mean they're talking about the same thing as subsistence labour. And by definition, a UBI isn't a UBI if it's means-tested, so if we're talking about a true UBI, this isn't really a concern.

ehashman OP , 2 months ago

I think many of these takes come from a disability-adjacent place. But I actually disagree with this sentiment.

UBI is universal basic income. It is a lowest common denominator. People with disabilities need more resources than the basic minimum; in a world with UBI, I don't think disability grants, supports, or stipends should cease to exist. Relying on UBI as the sole support of disability, whether short or long-term, isn't enough. We must demand more.