"In this study we clustered the transcriptome of #longCOVID patients into two distinct clusters & showed differences in innate and adaptive immune activation and pulmonary function between those clusters"
I have been on facebook. The things I have seen. Oh gods the things I have seen!
I'm playing here, but I've been on the precipice of an anxiety attack for about 45 minutes. In an autoimmune neurological illness group (so subtle, so not identifying) someone tested positive for Covid19 today and wanted our input on how it was with our flavor of illness and what we did.
Many of us got Paxlovid ASAP, thank fucking gods. But the rest. One of us rubbed horse dewormer on their feet. Several of us believed our doctors when they told us Paxlovid was only to decrease our current visible symptoms so didn't bother with it. One of us went to work and bragged about how they infected their entire small company. Very few of us know what airborne means. Most of us seem to get our news from FOX.
We are all going to die. This is me, one the sidewalk, with a sign. The world is ending. Deliberate ignorance rules.
The misinformation people will spread is unbelievable. I'm not so bothered about the horse dewormer (that came with valuable advice: get the topical, not the pills, FFS) because I assume most of us know that's bananas. But the Paxlovid stuff bothers me a lot.
Paxlovid is an antiviral and its purpose is to prevent the duplication and spread of viral particles, therefore hopefully preventing long-covid, hospitalization, and death. If you need to treat your stuffy head fever get some damn Nyquill and tell your doctor the same. (Preaching to the choir over here on Fedi and it feels so good.)
FOX is telling people that Paxlovid is a lie because it doesn't treat long-covid. It was never meant to. Long-covid is a compilation of a shit ton of damage and illnesses, none of which an antiviral would help with.
One of us in the group is in a snit now because she was wrong about all of her assertions and she got caught spreading the illness. Boo hoo, bitch.
Comparing risk of post infection erectile dysfunction following SARS #Coronavirus 2 stratified by acute and long #COVID, hospitalization status, and vasopressor administration
"We found that patients with #longCOVID are at a higher risk of being diagnosed with ED than patients with only acute COVID, while there was no significantly increased risk for patients with more severe infection requiring hospitalization or vasopressors"
"The results of this randomized clinical trial showed that a 15-day course of NMV/r in a population of patients with #PASC was generally safe but did not demonstrate a significant benefit for improving select PASC symptoms in a mostly vaccinated cohort with protracted symptom duration"
"Experiences of stigma and discrimination resulted in negative healthcare experiences and mistrust in healthcare, creating barriers to help-seeking. (contd)”
"The results revealed significant differences in the neurophysiological parameters of P300 & beta band rhythms in subjects affected by cognitive fog, and these alterations persist even 8 months after recovery from #Covid19"
Association between acquiring SARS-CoV-2 during pregnancy and post-acute sequelae of #SARSCoV2 infection: RECOVER electronic health record cohort analysis
"SARS-CoV-2 infection acquired during pregnancy was associated with lower risk of development of #PASC at 30–180 days after incident SARS-CoV-2 infection in this nationally representative sample”
Review article. "The sustained activation of the KP [kynurenine pathway], associated with cognitive impairments & chronic fatigue, underscores the potential of KP as a therapeutic target & as a possible biomarker for #longCOVID in future studies”
This is from posting pretty much solely on #MECFS , #LongCovid and related conditions and to a lesser extent chronic illness in general, which shows it is possible to build up followings on them, in case people either gave up on them or never tried.
@tomkindlon@longcovid@mecfs As someone with #fibromyalgia I find that we're mostly forgotten in the chronic illness community. While I would love to connect more, I have stopped talking about it because it's considered the "hysteria" of the modern era. I have some unique theories on what caused mine. But there is a much larger community around some illnesses than others.
I just unfollowed you because I’m not here to just read long posts and not have the chance to give any input on the disease I’ve had for 35yrs. You no longer value input from others.
"In our unmatched comparison, we observed that, following #COVID19, POTS and ME/CFS yielded higher rates than after negative testing. In absolute terms, we observed #POTS & #MECFS diagnoses to have a similar disease burden as DM [diabetes]"
"Interestingly, several symptoms characterizing Long-COVID19 mirror the Postural Orthostatic Tachycardia Syndrome [POTS] that represents the most common form of dysautonomia causing orthostatic intolerance …
The autonomic symptoms reported after SARS-CoV-2 infection are often underestimated by patients and unrecognized by treating physicians."
"The lived experiences of people with #LC, in relation to their condition and their experiences of healthcare services have provided a primary source of evidence”