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vlrny

@vlrny@disabled.social

🇨🇦 Good-hearted weirdo; expert pillow-nester; lover of trees and dark irony (not necessarily at the same time).
#actuallyAutistic #chronicIllness #chronicPain
Was #yyc, currently Eastern Ontario, trying to put down roots in #Guelph
Pronouns: she/her/gurl!

Thx for CW on food photos. 🤢

I tend to start conversations I am too tired to follow up on, but ya'll just carry on, I'm lurking.

Header image: bare curly branches reaching to a blue sky.
Profile image: Is me. Dat's mah face.

This profile is from a federated server and may be incomplete. For a complete list of posts, browse on the original instance.

vlrny , to random
@vlrny@disabled.social avatar

Note to self (and anybody else who needs to hear it):

It is ok if the only thing you do this week is steward your chronic illness through a heatwave. That alone is a complex and crucial task.

AnAutieAtUni , to MECFS group
@AnAutieAtUni@beige.party avatar

One of my worst PEM crash days today (ME/CFS) where any way of keeping myself entertained while resting feels ‘too much’.

Only thing I’ve managed is 1 episode of Astrid: Murder in Paris (awesome show) and several hours of live streams of birds’ nests (thank you, BBC Spring Watch!) Just haven’t been able to manage the mental processing of words very well. Short concentration span too.

Could not have foreseen that today would be a crash day, let alone so severe. I was planning on a longer walk today, pushing my baseline up. Was looking forward to it. Yesterday was a milder crash day, so the whole weekend has been a fuzzy blur.

Of course, I’m craving companionship right now but would also be way too overstimulated by it. Sensory and information processing is so bad on days like today.

No one besides one loved one will see me today. This is why ME/CFS is invisible. I not only look about the same as when I’m well, but people don’t see me when I’m at home, sick. It helps me recover but doesn’t help other people understand.

@mecfs

vlrny ,
@vlrny@disabled.social avatar

@AnAutieAtUni @mecfs
May I introduce to you:
Live Jellyfish cam. It has been a good companion/distraction on days when I can't handle much stimulation. Gently fascinating.

https://www.youtube.com/live/OMlf71t2oV0?si=Ddt_tiLBLBrh_ZQC

vlrny , to random
@vlrny@disabled.social avatar

And yes I packed pine cones. Don't judge me! ... though with this crowd, you'd probably judge me rather favourably. 💚

vlrny OP ,
@vlrny@disabled.social avatar

@loren you get it!

vlrny , to LonelinessCorps group
@vlrny@disabled.social avatar

Bad news is I am back in the stupid town and stupid apartment that nearly killed me to pack up my life and move it to Guelph (yay!)

Good news is I have access for an installation of !
Choices this round:



Starting between 5pm and 7pm my time.
Let me know if you are interested and which movie.
@lonelinesscorps

vlrny OP ,
@vlrny@disabled.social avatar

☝️Ok! Am just getting some dinner then can make a movie happen anytime.

Anybody want to join me for a co-watch? You can pick the movie. :)

(if yer reading this days later, ping me anyway, hiding in my room with the a/c on, watching DVDs is pretty much how I will roll the next 2wks).

@lonelinesscorps
(literally, because a/c hyuck hyuck)

vlrny , to random
@vlrny@disabled.social avatar

I would like to cultivate my own strain of weed and call it "My Last Fuck," just so I can say:

Well, I would get upset about that, but I just smoked My Last Fuck.

loren , to random
@loren@flipping.rocks avatar

i really shouldn't give two middle fingers up out the window every time the guys are leaf blowing next door but here we are

vlrny ,
@vlrny@disabled.social avatar

@loren

Gollum GIF Gollum hissing with the caption: We hates it, Precious

vlrny ,
@vlrny@disabled.social avatar

@loren 💯

18+ vlrny , to random
@vlrny@disabled.social avatar

Well shit.

vlrny OP ,
@vlrny@disabled.social avatar

@RolloTreadway 🤞

vlrny , to random
@vlrny@disabled.social avatar

For anyone feeling beat down or worn out, a reminder just continuing to survive in a society that thinks you are disposable is pretty fucking punk rock.

Your messy (currently) miserable existence is an act of rebellion.

Fight the power. ✊ Live through this.

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