On the other hand, my partner has just come out of hospital (last week) after a foot amputation and I have been very impressed by the level of support available, and the kindness of the people providing it. Maybe we lucked out in terms of postcode lottery or something, but the NHS can be absolutely amazing at times!
From an outsiders view. It all feels on purpose. Slowly killing nhs funding, make ppl upset, tell them its because xx and private is better and boom american healthcare.
My 2yo has cerebral palsy and can't sit or crawl. We got a good amount of equipment for him.
But bath seats were deemed not daily equipment and we had to go to a charity and apply for funding. It was a long and complex process but we got there in the end.
On a related note the cost a disabled equipment is ridiculous! I understand it is specialist stuff but some of these things are like 500 quid for a seat with a few extra straps.
Feels like the way they mark up everything if you mention it's for a wedding.
When the couple adopted the twins, a court ordered that council-run children's services should provide them with 77 hours of support a month, split between Jack and Chloe.
NHS Somerset told the BBC it appreciates "this has been a very worrying time for Jack's family" and that it is "sorry if the assessment process and the outcome of the appeals have caused them additional distress".
NHS England says the threshold for screening people for funding is at a low level to ensure a full assessment is done, but most who apply won't be eligible.
The story is even starker for under-18s - with eligibility rates ranging from 14% to 96% in 2022-23, according to data obtained from 33 of 42 NHS Integrated Care Boards (ICBs), who run the schemes.
Since we first contacted NHS Humber and North Yorkshire ICB, it has agreed to another 16 hours support for Andrew at weekends, but problems finding care staff mean it hasn't started yet.
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